Sarah & Bob ~ Premmie Parents of the Moment

Parents Names: Sarah and Bob

Their gestation born: Lily Grace

How many premmie babies do you have? 32+1 Weeks

How long were they hospitalised for? 26 Days

Is there any prematurity in your families history? Yes. I have four cousins who were late term premmies.

How did you cope with the world of prematurity when your child/children were born? It was overwhelming to say the least.

As I had been in the hospital from 23 weeks, we had done a NICU tour, so I feel like the shock of seeing the NICU for the first time was already gone. The biggest thing was coping with the long and often lonely days and the even longer and anxiety filled nights (Would they mind if I called now? It’s only midnight!) and having rules about how I could interact with my sweet baby. I also struggled with trying to explain to people about what being premature meant for our daughter. People say some strange things and it’s hard not to get furious, especially when in your heart of hearts you know they really care about you and your child, they just haven’t got the right words.

How did you feel when you first saw your child/children after they were born? Overjoyed. She was so beautiful and healthy, I just cried and cried.

My husband tells this amazing story of when he was returning to me after delivering our daughter to the NICU and he bumped into another father taking a photo of the sunrise. They did the usual back and forth and then the father said “It’s amazing. His first sunrise.” And my husband smiled and nodded, but inside he was thinking “The sunrise isn’t amazing. She’s amazing. She’s alive!”

Did you find it hard deciding to have another baby or have you decided no more? No, were really excited for another baby and were blessed with a termie 17 months later

Have there been any lasting complications due to your child/children’s prematurity? If so how have you dealt with it? I’m not sure if these are premmie complications or not, but my termie doesn’t suffer from any of these, and neither do my husband or I.

She has excema, as well as allergies to a wide variety of things that come into contact with the skin, including bandaids, baby wipes and mosquitoes. She has been diagnosed with anaphylaxis after a reaction on Christmas Eve 2010, but we don’t know to what. We carry an epi-pen as a precaution.

She suffers from chronic constipation, which we are still trying to treat. Due to the excema and other allergies, we think it’s a food intolerance, but right now we are treating it as just common toddler constipation.

Her gross motor is also delayed, many things, including walking and rolling being late even for corrected age.

Otherwise she is so perfect.

How do you feel now about prematurity and how do you help others be aware of how serious it is for babies? We love to be active in fundraising events, like Wear Green for Prems day and we take every opportunity to educate people. Most people are really interested.

I always reach out to other mothers of prems when I hear of them and offer as much support as I can.

I also keep a blog, this is cathartic and I find gets quite a few hits when I talk about incompetent cervix and Lily being premature. It’s nice to know people are gaining information from my first hand experience.

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