Premmie Parent ~ Pregnant Again cont…

Well here i am at 32 weeks pregnant! I cannot believe that i am still pregnant after having such an early premature birth with Ronan.

A lot of things have been happening including still going to my high risk clinic appointments at Monash every 2 weeks and we actually found out the reason WHY Ronan came early after a few blood tests and an AMAZING doctor who is looking after me. She is just the BEST and i couldn’t have asked for such a more gentle person to look after me throughout this pregnancy. I am very blessed that she figured out what happened within 2 weeks and no one else even tried after 2.5 years!

The best way to describe the reason for Ronan’s premature birth was that my placenta was not working properly. My blood results that were taken recently indicate that i have a “spelling mistake” in my chromosones. Basically my placenta will absorb nutrients ie: folic acid etc.. but it does not know how to distribute the nutients, so my placenta pealed away which lead to “placental abruption” due to the lack of nutrients. With the placenta pealing away this triggered on the heavy bleeding and the sponateous labour. Apparently this condition/”spelling mistake” is something that is passed on from my parents. Unless tests were done we wouldn’t know which parent it was but due to my mother & sister not having any complications with premature babies/premature birth of their own it would be interesting to find out if it was from my dad.

I had a scan last week to check that bubs was growing correctly and apparently everything is going great. He was head down, there was plenty of fluid, the cervix was closed and bubs weighed approx 1.8kgs or 1800 grams so he was growing very good. Apparently around the 31 week mark most babies weigh approx 1500 grams so he is a chubby bubby! My doctor said that he would be around 7 – 8lbs when born. What a huge difference between that number and 2.8lbs when my little premmie was born. Gosh i hope i don’t have any problems delivering naturally due to having a BIGGER baby.

Here i am at 32 weeks gestation and still going strong. I am feeling really good this pregnancy, no swelling, no backaches, no complications. It does actually feel very strange to know that i have a “normal” pregnancy! This is not something that i thought would happen and everyday i keep waking up thinking “ok when will our little boy come, is it today”. Because i am anticipating another premature baby i am sure we will have a very healthy newborn which will be totally surreal but very exciting.

I hope that my little updates give those parents of premature babies a little hope that having another baby after having a premmie can actually go to plan. It all depends on your situation of course but if you do plan on having another baby be sure to book yourself into the “high risk clinic” at your nearest hospital so you are closely monitored. For the health of you and your baby and also for peace of mind they really do watch you and monitor everything along the way.

Here is a picture of my belly at 31 weeks!

Pre-Eclampsia Awareness Week

I just discovered that this week is Pre-Eclampsia Awareness Week.

I had never even heard of pre-eclampsia until a friend of mine told me it was the reason she needed to have her baby delivered 8 weeks early, four years ago. To be honest, at that time I didn’t have any idea what she had been through. Since my daughter was born I’ve met a lot more women – mostly via L’il Aussie Prems – who suffered from this very serious and sometimes life-threatening medical condition and whose babies were born prematurely as a result. In fact even two friends in my new mothers’ group who were able to have full term babies also suffered from pre-eclampsia in the late stages of their pregnancy. It’s a lot more common than I had previously imagined.

The Australian Action on Pre-Eclampsia (AAPEC) has a website at http://www.aapec.org.au with a good FAQ and stories from people who’ve been through it personally.

Photographing and scrapbooking your NICU experience

I love Talia’s NICU photos, looking back on them now. I wish I had more of them, and I really wish I had some video. I don’t think I realised at the time how important they would become, because when I was spending so much of every day in the nursery, I felt as though every detail would be burned into my brain forever. Unfortunately, you do start to forget the little details so every photos is precious – especially the size comparison photos, and the few of me holding Talia. Sadly I lost a lot of my hospital photos last year due to a computer failure – so be sure to create a back up of any photos you take.

I know there are mums who who can hardly bear to look at their hospital photos, showing their baby looking so small and struggling to hold on to life – but it is better to have the photos and choose not to look at them, than not to have them at all. One day your child may also want to know more about how their life started and how amazingly far they have come.

The nurses at my hospital were quite good at giving me little items to keep – things like hospital bands, a tiny blood pressure cuff, monitor leads, the little paper tape they use to measure head circumference and so on. They also made me a card for Mothers Day with Talia’s footprints in it, and so forth. All these precious little souvenirs are in a special memory box which I dip into from time to time.

I’m not really a scrapbooker, although I’ve done a bit of digital scrapbooking. However I know a lot of people like to create baby pages, and if you want something special, here is a site which offers stickers and other scrapbooking stuff specifically for premature babies: http://www.mykidsinspiration.com/shop/index.php The only drawback is that they call premmies “preemies” in the US.

These are a couple of my digital scrapbooking pages, they are part of a photo book I made of Talia’s first year. (They don’t actually use anythings specifically for prems, other than my actual photos.)

You can see scrapbooking done by other premmie mums on the L’il Aussie Prems forum here.

Premmie Parent ~ Pregnant Again..

My son was born at 27 weeks gestation due to preterm premature rupture of membranes and premature labour in March 2006. I am now pregnant with my second child and at present i am 25 weeks along and starting to feel very anxious due to my previous premature birth.

My pregnancy has been great although the first 14 weeks were horrible due to morning sickness, tiredness and hormones but it is something to be expected. Since 14 weeks along i have been apart of the “high risk clinic” at Monash Medical Centre and the care i have been receiving is not only supportive but a real relief and i cannot thank everyone enough. I have had scans of my cervix, the results were all great and i had another scan today to check the placenta which also came back great. I have also had quite a few blood tests taken and have many follow up appointments.

The biggest hurdle and milestone for me was to reach 23/24 weeks gestation. After having a premature baby and seeing/knowing the survival rates and outcomes i was just hoping to either reach or pass the critical stage. I have many friends who have had premature babies born at those gestations and whilst the babies are doing great each babies journey is so different so the outcomes are always different.

I received the results from my placenta after my son was born and apparently the report mentioned that there was a small 5mm tear present but otherwise the placenta was very healthy. There was no explanation as to why it happened however today the doctor came to the conclusion that maybe the placenta tore away slightly which resulted in PPROM which triggered the premature labour which is why i had the scan today to check the placenta but everything was fine.

It took me 2 years to have enough courage to have another baby. I had to understand what happened and how i felt about having a premature baby and if i could go through the while preterm birthing experience again. After having a previous premature baby there is a high chance that it could happen again but nothing is concrete so because of the “unknown” it was hard for me to decide when the time was right. Our son is now almost 2 1/2 years old so i did not want to leave the decision too long. If i knew a year ago about the care i would be receiving i probably would have started trying to fall pregnant sooner rather than later.

Once i reach 28 weeks (fingers crossed) i will stop thinking and stressing about every little detail. It is very hard not to think about “what if”, “when will this baby come”, “what will it be like if i make it to term”, “how will we cope having another premmie baby in hospital BUT with a toddler”. The questions you ask yourself are endless but i am trying to stop my mind from thinking too much as all my results are coming back normal and healthy. Once i reach 28 weeks i will have a small celebration that we made it this far, we can continue onto 40 weeks.

Premature Baby Born at 22 weeks in 1909

Margaret Murphy began life about 18 weeks early weighing around 390 grams at St Margaret’s Hospital in Sydney. These days it’s still special, but not so unusual, for a prem baby to ‘make it’, but for Margaret, born September 19, 1909, it was and still is incredible.

“Wrapped in cotton wool inside a shoe-box, fed with an eye dropper, and she didn’t come home from hospital for three months,” says Elaine Murphy, Margaret’s daughter and only child. “Premmie girls are notorious for being the most determined,” chimes in Amanda Lonergan, President of the National Premmie Foundation.

Margaret survived at least one bubonic plague scare in Sydney prior to 1925. “Mum said that if you went out without your mask on you just got sent home, she never caught it.” “She was always a tenacious lady, but always a very quiet lady. “The vascular dementia, and the clots associated with it, gradually took away mum’s ability to hold long conversations, but right up until the day before she died she still communicated very easily. “She had a funny way of wiggling her eyebrows, so she didn’t say much but her expression was just amazing. “I’d always come away from visiting her buoyed up, because she always made me laugh,” says Elaine.

Margaret was never one to complain about anything, even when her husband Walter was beaten by street kids in Melbourne and passed away after 15 weeks in a coma. “She heard that attack, it happened right outside the front door of their Melbourne home in 1983 after Walter returned home from a dinner.

“Mum and dad had a routine, he’d ring the doorbell, take the dog for a walk and she would make the coffee.
“That night the dog came home and dad didn’t, mum went instantly deaf. She was shocked to the core, but she never complained about her lot in life.”

Margaret was always a spontaneous sort, Elaine reminisces. “On their honeymoon to Jenolan Caves, mum decided she’d climb the flag pole to tie a hankie at the top. “The flagpole is on the edge of a cliff, and when mum got to the top she froze up, then dad had to climb up and help her down.” Margaret was also a lover of fashion and hats, she was always a lady, always dressed up. “Whereas I’m a tomboy,” laughs Elaine.

“We lived in the Northern Territory for a while, and mum would ride around Arnhem Land on horseback.
“She loved the country and animals, she had a real way with animals.” Two days before Margaret died, Elaine hurt her hand and when she visited her mum, Margaret only expressed concern about the injury.

“It was a real mother thing. I thought, here you are dying and you’re still only concerned with my welfare, she was a mum right up to the end.

“I contacted Amanda because I thought that my mum’s story would give hope to parents of prem babies, that they can and do live full, happy lives,”

“Having a prem baby makes what should be a wonderul, happy time into something traumatic. “Mum was tenacious right to the end, she was born that way and she left that way,” says Elaine. Sadly, Margaret passed away earlier this month in her 99th year from the effects of her dementia.

Article in Bendigo Weekly 

Premmie Parent Diaries

We have just introduced a new area on the forum for premmie parent diaries. They are similar to a blog but are kept on the forum so you can share with forum friends what has been happening with your premature baby. You can start threads on your premmie baby, premature birth, family life, your premmies milestone delays, your babies achievements, weight loss or anything you wish to talk about.

If you wish to start your own diary you need to be a member of the forum www.lilaussieprems.com.au/premforum . Once you have registered reply to the following thread and a diary will be created for you.

www.lilaussieprems.com.au/premforum/diary-sign-up-t3572.html