The Murdoch Childrens Research Institute

premature baby, babies, parenting, blogs, premmie, australia, support, new idea magazine, premature babies, murdoch childrens

premature babies, premature community, forum, babies, premature support, birth, preterm babies, parenting, premature birth

The Murdoch Childrens Research Institute development board invites you and your family to Discovery Day a family picnic day hosted by our patron Dame Elisabeth Murdoch AC DBE in her beautiful gardens at Cruden Farm.

Sunday 24 February 2008 10am – 3pm

Tickets
$40 for adults, all children free. LIMITED TICKETS AVAILABLE. The event will go ahead in all weather, no refunds. Please take special care with children as there is an unfenced lake on the premises.

purchase-tickets.gif

What to expect
All kinds of musical performances, roving entertainers, music and dance workshops, SpongeBob Square Pants, Patrick Starfish & Dora the Explorer, clowns, face-painting, pony rides, animal farm, jumping castles, Dorothy the Dinosaur, DJ David Southwick plus many other stage shows, retail stalls, amazing raffle prizes and giveaways for all children.

What to bring
A rug & picnic. Food available on the day includes sausage sizzle, Splitrock drinks, Aded Flavour sandwiches & cupcakes, Gravity coffee, New Zealand Natural ice cream & sorbets, Sunny Ridge strawberries, Bird in Hand wines & Southern Bay Brewing Company beer.

Getting there
Cruden Farm, Langwarrin (enter via Cranhaven Road, Melway reference 103 G6)

100% of proceeds go directly to the Murdoch Childrens Research Institute.

Murdoch Childrens Research Institute conducts innovative research to help ensure all children lead happier, healthier lives.

Cruden Farm Project Group
Jackie Bursztyn, Romy Bursztyn, Susannah Calvert-Jones (chair), Narelle Curtis, Victoria Lord, Linda McNaughton, Jill Murray, Susie O’Neill, Candy Rosenbaum, Lana Sheezel, Ellie Smorgon, Michelle Wenzel.

Development Board
Lisa Bond, Susannah Calvert-Jones, Suzi Carp (chair), Narelle Curtis, Tony Davies, Ben James, Marisa Leone, Victoria Lord, Sarah Murdoch, Sam Patterson, Angus Reynolds, Emma, Rosenberg, Fiona Rowland.

For more information please visit www.mcri.edu.au

Premature Baby Twins – Born At 22weeks

I have been speaking with a very proud father of premature twins who were born at 22 weeks & 2 days gestation in 1997. Reading the story of Amy & Sophie was just amazing and just reading what their father wrote brought tears to my eyes. It is a journey of 2 premature baby twins and the struggles Amy faced in the beginning of her life. Her twin sister Sophie passed away but Sophie’s strength lives on in her sister Amy.

An amazing story of how medical science has evolved over the years and saved the life of such a beautiful premature baby.

Amy & Sophie’s Journey

7 months corrected and eating, eating, eating…

I browse a number of websites for parents of premature babies, and the topic of “when should I start my premature baby on solids” comes up time and again. Some people believe you should go by corrected age, others feel that actual age is appropriate because prem babies are digesting milk from very soon after birth. However, regardless of which side you take, the fact remains that if your baby is not ready to eat, no amount of coaxing and saying “yum, yum!” is going to help.

When Talia was not thriving on just breast milk, I consulted the lactation consultants from the NICU, who suggested I start Talia on solids at 4 months corrected (7 months actual) rather than offer formula. What a joke! Talia was nowhere near ready to start, and my efforts only ended in frustration for me and bewilderment for for my baby. In contrast, she took to the formula like it was nectar of the gods.

Time passed, and every few days or so I would patiently offer up a spoonful of Farex. Perhaps if I’d tried it myself I might have realised how unlikely Talia was to ever show any interest in it. Her expressions of disgust said it all.

I lovingly cooked up pear, sweet potato and pumpkin, pureed it and froze it into ice cubes. I could sneak a smidgeon past her lips – but no more and no further. I expanded the repertoire to include apple, carrot and potato, and suddenly she would eat a cube, and I would think “yes, we are making progress”… but then she would reject the exact same fruit or vegetable the following day.

Somewhere around 6 months corrected (9 months actual) Talia started to accept about 1-2 cubes per day. I had a hit with pumpkin and avocado, figured out how to put peas and corn through the sieve and was starting to feel I was making progress, although it was hardly going to put any weight on her compared to the formula, and her tongue reflex was still strong, so I was spooning in food then having it pushed straight back out again, even when she seemed to enjoy the flavour.

Talia waves a spoon

Then, at almost 7 months, something clicked for Talia. Maybe it was when I started to blend more flavours, maybe it was the introduction of roast chicken or maybe it was just the way the planets were aligned, but suddenly she wanted MORE FOOD and she wanted it NOW.

In the last week, Talia has eaten 3 or 4 meals a day, including at least 2 with meat and veg. (She seems to prefer this to fruit, either mashed with milk, with farex or with yoghurt). She demands to be fed, and leans forward with mouth open to take the next spoonful. It goes in and it stays in – and the proof is in the pudding, so to speak. I had her weighed on Monday and she’d put on 405g in 2 weeks. Not bad for a baby who regularly put on only 30g/week on breastmilk.

I feel as if a difficult chapter of Talia’s journey – the section where I worried myself to the point of depression about her lack of weight gain – is finally over. At the same time, our breastfeeding routine has dropped down to one feed per day, first thing in the morning. Its days are numbered, and I feel a tinge of sadness that this part of our relationship will soon be over, but I am happier to let it go knowing that Talia is making progress in other areas.

New ~ Premature Baby Support Forum

L’il Aussie Prems has a new modern support forum for families of premature babies.

The old forum was great in the day but the security features on the new one are so much better which means less spammer sign ups (less strain on my email) and the backend features just blow you out of the water and the forum is now much more user friendly.

I spent 2 days working on the new forum because it isn’t a simple case of throwing it all together because you get errors along the way when trying to add/change things. When you get errors you then need to search for the solution but the first one you find isn’t always the right one. It can take hours to just do 1 thing but i am very patient and it has paid off with the new premmie forum.

I tried to find a template that either matched what was already there or find something that was easy to follow. There are 100s of templates available but i also wanted something to follow on with the sites pastels theme as it reminds me of premature babies, soft & gentle.

I hope you all enjoy the new premmie forum and i better get back to my email as i haven’t looked at it for a few days and have over 900 emails to go through!

www.lilaussieprems.com.au/premforum

Prem Of The Month

Each month we will be featuring a premature baby for “prem of the month” in our newsletters.

“Miss January” is Talia Rivka and her mother Kathryn

Where was Talia born? KEMH in Perth

What was her gestation? 26 weeks, 6 days gestation

And her birth weight? She was 855g – now at 6 months corrected she’s finally over 5kg, woo hoo!

What do you remember most about your NICU journey?
Wondering if Talia would ever come off CPAP. Struggling to breast feed. Singing songs through the humidicrib window. Wonderful kangaroo cuddles. Pumping, pumping, pumping…

What might the NICU staff remember about you?
I was the mother who refused to give out my premature babies name for 5 days while I waited for my husband to come back to Perth. Even now there is a nurse who still asks after “Tic-tac”.

What has been your proudest moment since Talia came home?
Talia has some developmental delay (for example she is still not rolling) so we don’t take anything for granted, and every little milestone is a real buzz for us. Recently she figured out how to stay sitting up and we were just ecstatic. And I’m still producing a little bit of breastmilk for her, which is borderline miraculous given my problems with supply.

What is your top tip for other mothers of premmie babies?
Take lots and lots of photos of your premature babies – and make sure you keep a copy of them somewhere safe. I lost a lot of photos when my computer died and I didn’t have a backup. Also I wish I’d kept a journal, even if it was brief, because all those vivid early memories which I thought I would never forget are starting to dim now that time is passing and so many new memories are being created as Talia grows.

kathryn-talia.jpg

If you wish to receive our newsletters so you can read the journey of next months premature baby you can register here and if you would like to see your premature baby as “prem of the month” please email admin@lilaussieprems.com.au

Premature Baby Dolls

Weebundles Hand Made Preemie Dolls

I have been speaking with the lady who makes the premature baby (preemie dolls) and what a lovely yet busy lady she is. Her preemie dolls are highly sought after not only in the USA but also here in Australia.

Weebundles Preemie dolls are made from 100% polyester fabric in five color choices. They have a fleece inner liner and are stuffed with a combination of all new stuffing and doll pellets (both metal and plastic). premature baby doll, premmie, preemie, premature babies, angels, support

• The joints are made with metal buttons.

• Dolls are made to the weight of your premature babies gestation or made to your premature babies real weight

• Faces can be painted, sculpted or left blank upon request.

• All dolls come with a hat and preemie diaper.

I have many momentos from Ronans stay in NICU from oxygen masks, premature baby nappies (huggies), his little CPAP beanie, milk bottles, expressing equipment, little sensor monitors he wore, my mothers day card made from the NICU nurses, ink pad and photos galore but i will never get my premmie back (trust me i don’t want another premmie), but having one of these dolls made to the size of what Ronan was when born would just complete the memories i have of him.

After having a premature baby, over the years the memories can start to fade and your memories of their size completely goes out the window especially if you have seen full term babies since then. A preemie doll would help you to keep those memories in tact which is why i cannot wait to have one made to size.

www.weebundles.com

(ships to Australia)