National Premmie Day 2008!

It has been announced that the next National Premmie Day is Friday 25th July 2008! This is very exciting news and this gives everyone plenty of time to organise their gorgeous premature babies and hold an event in their area.

National Premmie Day is a day to celebrate all of those amazing premature babies out there in Australia who have been through SO much. It is also a day to celebrate those precious babies who are in hospital fighting for their lives to be with their families. Having a premature baby is an amazing, scary, heart wrenching, exhausting experience and a very long road for many parents. To be able to celebrate these “little battlers” on a special day just for them is inspiring.

The members at L’il Aussie Prems will be holding events around Australia. You will be able to find a list of premmie day celebrations on the premforum in the coming months. There will also be a list of events also available on the Premmie Foundations website also in the coming months. If you are holding an event of your own be sure to join the premforum and let all the parents know the details so others can join you.

We are sure everyone will have a fantastic premmie day and lets all join in celebrating our beautiful children!

For further details please see www.prembaby.org.au

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Premature Baby & Music Therapy

I remember when Ronan was in NICU and the music therapist came to see us. He was around 6 weeks old when she started chatting about music therapy and how it helps to settle premature babies in stressful situations. I listened to what she had to say but told her to come back as i wanted to have a think about it. This was one of the first decisions i was going to have to make for my newborn baby who was lying in a tiny humidicrib trying to fight for his life, so this was not something i wanted to make a decision about on the spot.

After doing a little research at home i realised that music might actually be a good thing for Ronan after being born prematurely. It wasn’t until he was moved down a bay and was more stable that i decided to contact the music therapist. She came in with a set of speakers, put them in Ronan’s bed either side of his head and softly turned on the music. She had a questionaire sheet that she filled out and gave one to me also. We sat there for about 20mins whilst the music was playing just watching Ronan’s cues to see how he would react. At first i don’t think he knew what was happening and seemed a little frustrated. After about 5mins of the music playing he seemed to relax and stop squirming so we decided to leave it in his bed for the time being.

The music was to only be played when he was having his “cares” and just after a bath so he could relax as these two events always seemed to stress him out. Over time we started turning on the music every time we left for the night and he seemed to settle straight away which was music to our ears!

To this day he loves music. I could turn on the radio and straight away he will look at me and smile no matter what song is playing. Whenever i sing to him he tries to sing/babble back and he loves his ocean aquarian we have left in his cot. He is also a very relaxed and calm child but whether this relates all the way back to music therapy and helped to pave the way for his calm personality i guess i may never know.

Did your premature baby have music therapy whilst they were in the hospital? Do you believe music is something that all premature babies should have?

Australian Multiple Birth Awareness Week

There will be celebration in duplicate, triplicate and even quadruplicate on Sunday 9 March 2008 when Multiple Birth Awareness Week begins Australia-wide.

It is important to acknowledge that it is not only mothers who need this help with tips about carrying, delivering, caring for and raising multiples. Fathers and same-sex partners play a pivotal role in the family and often shoulder significant stress in a multiple birth family. There is a great pressure in being the sole breadwinner of a suddenly much larger family with a severe increase in financial, physical and emotional needs from the family, and balancing home duties with career is stressful at the best of times when babies abound. Just like mothers of multiples, fathers are significantly more likely to suffer depression both in the lead-up to and in the first year of their multiples’ lives and they too will call on AMBA’s services.

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For further information please visit

www.amba.org.au

premature baby expo tickets

Please print out this page for your tickets to the Adelaide show.

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My l’il premmie’s milestone delays

Ronan is now walking around everywhere. He occasionally crawls but would prefer to walk. Whilst he is great with walking and his balance is incredible he still faces many hurdles with walking. Being born premature was a fight to begin life and what an amazing journey we have had. Ronan has been attending physio since he was 6 months “corrected” due to low muscle tone due to his premature birth. Ronan has taken a long time to reach many milestones, sitting was the longest one to reach but we finally got there.

Ronan was walking a long furniture for i think 7 months before he finally let go. Those premmie fighting instincts finally kicked in and he was a free man! He took his first step without support at 18 months corrected. To be honest i had no idea how much longer it would be before he would then one day he tried and has never looked back since. It was the proudest moment of our lives to see the look of excitement on his face.premature babies, premature community, forum, babies, premature support, birth, preterm babies, parenting, premature birth

Whilst he loves walking and the more he walks the more exercise his muscles get he still cannot bend his knee’s to pick something off the floor without holding onto support. His muscle tone is once again letting him down and we are forever trying to built that strength up by helping him to walk up stairs which is a real struggle for him.

Winning the “Local Hero” award with my council i hope to help other parents with premature babies around my area. I have a few idea’s in the pipeline and hopefully they come to fruitation but it will be a long process one that i hope premmie babies and their parents will use should their babies have milestone delays.

Ronan still has a long way to go with his walking but each and everyday he is growing and learning so much. What else can a parent of an ex 27 week premature baby wish for?

Prem of the month – February

Each month we feature one of our members’ special premature babies so we can learn more about their amazing journey through NICU. This month we would like to introduce;

Hunter and his mother Racheal

Where was Hunter born? Hunter was born at the Royal Womens in Melbourne, but was transferred when he was 1 week old to the Northern over at Epping

What was his gestation/how early was your premature baby? He was 35 weeks and 2 days

And his birth weight? He was 1705 grams (3lb 12oz). He is now almost 2 and is a small 8.5kgs

What do you remember most about your NICU journey? Our first cuddle – he was 2 days old and I was shaking as he looked so tiny and fragile. Holding his tiny hand through the isolette window. The day he graduated into a open cot. His first bath. The struggle with feeding, the expressing, finally being tube free and best of all, finally walking out the door with my baby

What might the NICU staff remember about you? Ummm… That’s a tough one!!!! That I came back for a second LOL. Probably the determination we had with feeding – I wanted to breastfeed but Hunter had other ideas.

What has been your proudest moment since Hunter came home? There have been heaps: Hunter crawling, walking, running, saying mummy. The compassion he shows when giving cuddles to his Daddy, his little brother Deegan and me

What is your top tip for other mothers of premature babies? Don’t be scared to ask for help! Accept offers of help and take heaps of photos as they grow up so fast. Cherish every moment, write a diary – I never did and wish I had with both boys. If your hospital offers professional photos get them done, take their foot and hand prints, have a teddy or something for comparison photos.

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