Premature Baby Support Forum

Our forum is a safe and welcoming place to gain support after the birth of a premature baby. Over the past year our membership has grown with more families joining on a daily basis from families currently just starting their NICU/SCN journey to babies who have been home for years, some with no ongoing issues and some children that have conditions that will continue for years to come. No matter what journey your premmie children are on our supportive community that is L’il Aussie Prems has become a home away from home and a family to so many.

Forum topics range in diversity from breastfeeding & expressing questions, toilet training, seeking advice on family matters, celebrations of milestones, photos, competitions, introductions and new arrivals to the L’il Aussie Prems community.

For a glimpse into our community, some of our latest forum topics are below.

Some home photos

Wipes

How much did your bub weigh at birth

Snaps sale

Hello everyone

Adelaide ladies

Which state are you from

How did you find L’il Aussie Prems

Why eat when you can play

With over 950 families registered on our forum you can be sure to find plenty of information, support and answers to many questions you may be asking after giving birth prematurely.

We welcome you to join our support forum. Everyone is welcome. We look forward to hearing about your premature babies and all about their amazing journey.

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Breastmilk, formula and mother guilt

I keep seeing this issue come up for premmie mums. You’ve expressed for your baby while they are in the NICU (and often longer) as much as you could, you’ve given breastfeeding your best shot, but at some point despite all your best efforts it just doesn’t work out, you can’t keep your milk flowing and it feels like the end of the world.

You are not alone in feeling this way.

First, if you’ve expressed milk for your child while they were in hospital, woken up in the middle of the night at home to attach yourself to a breastpump far away from the child you want to be holding, and endured all the dairy cow comparisons, you are a legend. You have given your child the most amazing gift, one which has made the awful hospital journey that much easier for them to negotiate. You’ve dealt with stress, grief, fear and everything else on the emotional roller coaster and still delivered the elixir of life. As time passes, I hope you will look back on this achievement, as I do, with considerable pride.

If you’ve managed to establish breastfeeding, you are a champion – and so is your prem! It’s not easy trying to suck when you’re on CPAP or have an NG tube in the way. You might have had a prem with a weak suck, or who needed the help of a nipple shield, or other assistance. It may have been a battle getting nurses to stop tube feeding or topping up while you’re trying to move to all suck feeds. It’s nothing like the pictures in the hospital of chubby full term babies instinctively suckling within hours of their birth. Yet your persistence has been rewarded by the amazing feeling of your child connecting with you in one of the most powerful maternal bonding experiences around. This moment may be fleeting but it is definitely one to treasure.

Then things go pear-shaped. Your baby isn’t gaining weight, the stresses and strains of the whole prem experience lead to supply issues, you just can’t bear to keep expressing after everything you’ve been through. Or maybe you expressed or breastfed for months and months after coming home – but you wanted to keep going for longer, and it just isn’t working out. You’ve searched the internet for every possible means to increase your milk supply, you’ve been on prescription drugs but even they don’t help, and despite everything the pro breastfeeding lobby says (and you consider yourself a pro breastfeeding mother) sometimes mothers don’t produce enough milk to keep both baby AND mother healthy. Because ultimately your mental health is just as important as your baby’s physical health – and sometimes this gets overlooked. I was on the verge of serious postnatal depression because I was so worried about Talia’s lack of growth and my inability to produce more milk for her, when I desperately wanted to keep breastfeeding.

Then comes the awful moment, the time you had always thought you could avoid – when you have to go and buy a tin of formula. For me this came when Talia was about 6 months old, 3 months corrected. Personally I found this step so horrible that I looked at tins many times, picked them up and read them but couldn’t put them in my trolley. My mother (who was hugely supportive of my breastfeeding goals, and very impressed with the resources available to help me, such as the Breastfeeding Centre etc) reminded me gently that I had gone onto formula at 6 weeks of age during the 1970s when breastfeeding levels were at an all time low and support for mothers to breastfeed was minimal – and I’d turned out OK, and no-one could tell whether I’d been breastfed or not.

Eventually it was my sensible GP (who is a mother herself and had done all she could to help me by giving me a 6 month prescription of motilium) who asked me to consider making the move, because she could see I was digging a big hole for myself psychologically, and didn’t think depression would benefit either Talia or me. She also reassured me that I had done an amazing job to breastfeed under the circumstances – and eventually I believed her. Still, the first day I offered formula I was still a mess of tears and disappointment. I hadn’t cared about getting a big pregnant belly, I didn’t feel guilt about her early arrival, but not being able to continue breastfeeding felt so much like failure.

I continued to breastfeed as well as formula feed for several months, but Talia found the bottle so much easier and eventually my supply which had never been plentiful dwindled beyond redemption. However, I gradually relaxed and was able to enjoy it without worrying so much about her weight gain.

Now I look back and things are much more in perspective – the joy of 20:20 hindsight.  It’s true that no-one can tell which babies were breast fed and which were formula fed.  It’s true that giving my daughter breastmilk while she was in hospital was the most critical thing, and that anything beyond that was a bonus. It’s true that I fed for longer than some mothers did, and for a shorter time than others, that I produced more milk than some but less than others – but it’s not about comparing yourself to other mothers. I know I did my best under the circumstances I faced, which is as much I could realistically ask of myself, and that’s all that matters now. The guilt has gone the way of my breastfeeding cleavage, and it is not missed at all – unlike the cleavage.

This article first published at Prem in Perth

Premmie Support Comes in Three’s

With thousands of premature babies born throughout Victoria yearly and in conjunction with National Premmie Day being celebrated on Friday 31st July 2009 three of Victoria’s amazing and dedicated support networks have joined together to help celebrate our little aussie battlers. All run by parents of premature babies themselves, Lifes Little Treasures, L’il Aussie Prems and La Toriana offer support to families through their unique experiences.

Lifes Little Treasures (LLT) is a charity funded by private donations and run entirely by volunteer parents who have experienced the rollercoaster ride of premature birth. They provide a number of services including support groups throughout the Melbourne suburbs and Greater Victoria, a quarterly newsletter, 24 hour support phone line, social occasions, informative parent resource guides morning teas at hospitals with Neonatal intensive care/Special care Nurseries, as well as providing the much needed practical and emotional support to prem families. LLT is a founding member of the National Premmie Foundation and looks forward to this year’s National Premmie Day running two events in Victoria. For further details please visit www.lifeslittletreasures.org.au.

L’il Aussie Prems is run as a non profit website founded by Julia Toivonen offering support to families from the comfort of their own homes through their online support forum. The site features information through articles, birth stories, galleries, live chats and birth announcements. With over 860 families registered on the forum Australia wide families can find information and the support they need from others who have been through this life changing journey. L’il Aussie Prems is a major supporter when it comes to premature babies and National Premmie Day and will be holding a live online chat for families who cannot attend celebrations throughout the day starting from 7pm. For details please visit www.lilaussieprems.com.au.

LaToriana is an online baby boutique that caters for premmie babies up to children 8 years of age. With a passion for organic and premmie baby clothes La Toriana specialises Australian and New Zealand baby and kids fashion with new and established designers. Founder of LaToriana, Elizabeth, understands the struggles to find premature clothing suitable for these tiny miracles. Elizabeth, a volunteer and sponsor of local and national premmie baby groups, donates a % of sales from her Premmie baby category. www.latoriana.com.au

“As parents offering support we have truly walked the path and understand the raw emotions parents and families feel after the premature birth of their children. It is a hard, over whelming and heartfelt journey, one that we hope to make easier through our dedicated & supportive network” said Julia Toivonen founder of L’il Aussie Prems and mum to two premature babies.

Events details for National Premmie Day celebrations around Australia are available through the Premmie Foundations website www.prembaby.org.au

For further information, interviews and photographs please contact:

Shusannah Morris – Lifes Little Treasures
contact_us@lifeslittletreasures.org.au
0437 254 360

Julia Toivonen – L’il Aussie Prems
admin@lilaussieprems.com.au
0412 248 583

Elizabeth Murphy – La Toriana
info@latoriana.com.au
0408 489 268

Celebrate Premmie Day With A Childrens Rose

National Premmie Foundation celebrates National Premmie Day with the Children’s Rose

Purchase a rose for yourself, as a gift for a family member or friend currently in the Neonatal Intensive care unit, or to support the work of the National Premmie Foundation. Then plant your rose and watch it flourish as it flowers and grows over the years. These special roses help raise funds to support the work of the National Premmie Foundation.

Price: $16.00 per rose

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Visit www.prembaby.org.au

National Premmie Day – Friday July 31, 2009

PRESS RELEASE

From little things,
BIG THINGS GROW

The National Premmie Foundation announces the 3rd Annual National Premmie Day with celebrations occurring Australia wide for the births of our smallest and most vulnerable newborns.

Each year approximately 21,000 newborns are admitted to Special Care Nurseries and Intensive Care units across Australia. July 31 2009 is the day to celebrate with our Little Aussie Battlers – our premature or seriously ill infants as well as remember those special babies who did not survive their journey.

The day coincides with Respiratory Syncytial Virus (RSV) season, a common virus that causes cold like symptoms. For prematurely born and seriously ill infants, RSV is a serious health threat often resulting in re-hospitalisation or forced isolation for families. By the age of 2 nearly all children will have been infected with RSV at least once and we want to make all parents and the general community aware of the signs, symptoms and preventative measures for RSV.

The National Premmie Foundation invites parents of premature and sick newborns to hold a National Premmie Day event in their local community. Support and information for families, carers and health professionals is available at www.prembaby.org.au or by calling 1300 PREMBABY (1300 773 622)

Reporter enquiries are welcome. Please contact Deanna Jenkins, President, National Premmie Foundation on 1300 PREMBABY (1300 773 622).npd

SUPER MUM sews selflessly for premature babies around Australia

Karen Cuthbert is no ordinary mum. As well as caring for her own six young children, the tireless Karen also finds time to sew exquisite little gowns and blankets for the benefit of some of Australia’s most premature babies.

Karen’s sewing machine produces a never-ending stream of beautiful garments in the most cheerful fabrics she can find, designed to meet the needs of babies in intensive care and warm the hearts of those who care for them. Since Karen started sewing her little garments she has donated 155 gowns across Australia.

Karen sends her gifts of love to families across Australia, most of whom she will never have the opportunity to meet. Her thoughtfulness and generosity have lead to her recently being nominated for a “Local Premmie Hero” award by one of the many people touched by her kindness. Karen shyly comments “I know what it is like to have a child in hospital, and I am more than happy to send families a gift and bring a smile to the faces of those with sick and premature babies around the country.”

Karen is just one of many nominees we have received that do amazing work and help for families around Australia. Please be sure to check back here as we will be showcasing some of our other amazing nominees.

If you know someone who has volunteered their time working along side families of premature babies we invite you to nominate your “Local Premmie Hero”. Please visit www.lilaussieprems.com.au/hero before the 30th April 2009.