Our 8 month (corrected) check up

Today was my birthday (old, even older than when I was pregnant and didn’t people go on about “advanced maternal age” even then!) and also the date of Talia’s 8 month check up.

As before our four month check up, we were sent a questionnaire to complete in advance of the appointment. In contrast to the previous time, we were delighted to be able to tick “yes” to many of the questions, including almost all of those relating to fine motor skills. She can pick up items as small as a sultana. There were still a few “not yet”s, including two of the gross motor skills – rolling and crawling. However we are much less worried about Talia’s development overall than we were 4 months ago, when she was clearly showing delays in many areas.

The actual meeting with the paediatrician was relatively short, and he told us that he considered all her development to be within normal ranges, with the possible exception of her speech development. Talia babbles happily, but doesn’t use many consonants. It might be that she is not hearing everything clearly, so he arranged for us to see an audiologist to double check Talia’s hearing. Of course it might just be that she is taking her own time – the same way she has been setting her own timeline for other milestones.

In the waiting room we met up with Talia’s boyfriend Reuben who was born the same day, at a similar gestation. He has always been bigger, and now at 8 months corrected he is around 10kg, has been crawling for weeks and is already cruising the furniture. In fact he is doing better than the full term babies in my mothers group who are the same age!

Just woken up

Talia herself is almost 7kg – 6960g to be exact, and nudging the 10th percentile. Four months ago she was only about 4.5kg and so far below the 3rd percentile that I was stressing myself into a state of depression. Thank goodness times have changed and all for the better. Her length is a little below the 10th percentile, although with the amount of wriggling going on I’d be amazed if they actually took a correct measurement. Most amazing though, was the head circumference. This has always been bigger than anything else, but when I put it on the chart after we returned home I couldn’t believe it – 90th percentile, up from less than the 75th. I guess those brains will come in handy, especially if she turns out to be as bad at sport as her parents.

As I’m writing this post it’s the end of the day and I’ve blown out a candle and made a birthday wish – to see my daughter continue to grow happily and healthily, and tick off all those boxes as “yes” eventually.

Hip hip, hooray!

7 months corrected and eating, eating, eating…

I browse a number of websites for parents of premature babies, and the topic of “when should I start my premature baby on solids” comes up time and again. Some people believe you should go by corrected age, others feel that actual age is appropriate because prem babies are digesting milk from very soon after birth. However, regardless of which side you take, the fact remains that if your baby is not ready to eat, no amount of coaxing and saying “yum, yum!” is going to help.

When Talia was not thriving on just breast milk, I consulted the lactation consultants from the NICU, who suggested I start Talia on solids at 4 months corrected (7 months actual) rather than offer formula. What a joke! Talia was nowhere near ready to start, and my efforts only ended in frustration for me and bewilderment for for my baby. In contrast, she took to the formula like it was nectar of the gods.

Time passed, and every few days or so I would patiently offer up a spoonful of Farex. Perhaps if I’d tried it myself I might have realised how unlikely Talia was to ever show any interest in it. Her expressions of disgust said it all.

I lovingly cooked up pear, sweet potato and pumpkin, pureed it and froze it into ice cubes. I could sneak a smidgeon past her lips – but no more and no further. I expanded the repertoire to include apple, carrot and potato, and suddenly she would eat a cube, and I would think “yes, we are making progress”… but then she would reject the exact same fruit or vegetable the following day.

Somewhere around 6 months corrected (9 months actual) Talia started to accept about 1-2 cubes per day. I had a hit with pumpkin and avocado, figured out how to put peas and corn through the sieve and was starting to feel I was making progress, although it was hardly going to put any weight on her compared to the formula, and her tongue reflex was still strong, so I was spooning in food then having it pushed straight back out again, even when she seemed to enjoy the flavour.

Talia waves a spoon

Then, at almost 7 months, something clicked for Talia. Maybe it was when I started to blend more flavours, maybe it was the introduction of roast chicken or maybe it was just the way the planets were aligned, but suddenly she wanted MORE FOOD and she wanted it NOW.

In the last week, Talia has eaten 3 or 4 meals a day, including at least 2 with meat and veg. (She seems to prefer this to fruit, either mashed with milk, with farex or with yoghurt). She demands to be fed, and leans forward with mouth open to take the next spoonful. It goes in and it stays in – and the proof is in the pudding, so to speak. I had her weighed on Monday and she’d put on 405g in 2 weeks. Not bad for a baby who regularly put on only 30g/week on breastmilk.

I feel as if a difficult chapter of Talia’s journey – the section where I worried myself to the point of depression about her lack of weight gain – is finally over. At the same time, our breastfeeding routine has dropped down to one feed per day, first thing in the morning. Its days are numbered, and I feel a tinge of sadness that this part of our relationship will soon be over, but I am happier to let it go knowing that Talia is making progress in other areas.

Three premmie wishes for 2008

Talia the kitchen fairy would like to make three wishes for all premmie babies for the New Year.

(Talia became a kitchen fairy by accident, after she discovered a fabulous magic wand in the cutlery drawer. It has special holes in it to make sure the magic comes out nice and evenly.)

First wish: to all premmie babies still in hospital – may you breathe strongly, grow healthily, receive the best possible care and come home soon

Second wish: to all premmie babies at home – may you eat to your mother’s content, play joyfully, sleep with your head full of growing dreams and find wonder in everything

Third wish: to all premmie angels – may you be remembered always with love

And a little bit of premmie magic to everyone who reads this!

Kitchen fairy

Sitting for the first time at six months corrected!

At least once a month I write a post about Talia’s development, or lack thereof, and some days it has been a struggle to stay positive when her milestones are delayed. So I am very pleased to announce that this month, we have made progress.Sitting in a box

Following a recommendation from the hospital physiotherapists, we have been putting more time into helping Talia sit. I started by sitting her up in a sturdy cardboard box, and more recently bought her a second-hand Bumbo seat, from where she can watch me hanging out laundry or pottering in the kitchen. I wedge her between cushions, toys and my legs, so that she can sit up and play without any fear of hurting herself when her balance fails and she pitches sideways or backwards. Or occasionally forewards, her head curving in a slow and graceful arc which ends as she kisses the carpet.

Sitting by herselfUp until last night, Talia always needed the support of an adult finger in her hand, or a leg behind the small of her back. Then, we noticed that she seemed to be leaning forward almost confidently, and we moved back, leaving space behind her. And she stayed sitting! She played with her toys, waved her arms around and generally behaved like someone who has been sitting for months, not minutes.

My husband and I were as excited as if Christmas had come already. I grabbed my camera and took a dozen or so photos – most of which were blurred due to Talia waving her arms or moving her head. Maybe she was doing a happy dance too!

Today Talia is exactly nine months old, six months corrected. Halfway through one of the most amazing developmental years of her life, and we are as proud as parents can be.

Advised to start physiotherapy

Last Thursday we went to our monthly group physio appointment. The hospital run these sessions largely as a screening exercise to check that all their NICU graduates are progressing normally. It is also a good way to catch up with other mothers and babies, some of whom I met when Talia was in the NICU.

At each session, the staff deal with each baby in turn. We were one of the last to be seen, and I put Talia down on a mat and offered her some toys while we were waiting. She immediately started crying. I don’t know whether it is the lights or the smell or what, but she transforms from a placid, happy baby into a wailing, uncooperative mess every time we go. I also find these visits stressful, partly because of Talia’s reactions, and partly because it becomes ever clearer how far behind she is falling compared to babies of similar corrected age.

online support forum, premature babies, premature baby, premmie, twins, triplets, NICU, birth stories, galleries, physioThe first thing I am asked is “So, what does she do?” It’s a question that almost reduces me to tears, because I want to focus on the positives – how much she has grown recently, how much better she is sleeping, how her smile lights up the whole room, how she brings so much happiness to everyone who loves her.

But I know what sort of things they are asking about, and compared to the other babies there, she doesn’t do very much. She is 5.5 months corrected (8.5 months actual) and shows no signs of wanting to roll yet. She doesn’t automatically reach for and play with toys, or bring her hands together often, and she doesn’t play with her feet at all. To make it worse, she becomes so distressed in the physiotherapy room that I can’t even get her to show them how much better she is at tummy time these days.

In the back of my head there is always a nagging fear: what if there is a medical condition underlying her slow development? At Thursday’s session I am finally brave enough to ask this question to the physiotherapist. Thankfully she does not see any indications of cerebral palsy at this stage, but tells me she feels Talia would benefit from one-on-one sessions in addition to the group sessions, starting next month. As she explained it to me, without some assistance to develop her gross motor skills, at some point Talia will become frustrated because mentally she wants to progress but physically she is not capable.

Back home after the session, Talia returns to her calm, sunny disposition and waggles an arm at me in an unco-ordinated fashion, almost as if she is telling me to take it easy and not worry so much.

Hey, even Einstein was a late developer, and he turned out all right.

Making progress at 5 months corrected

Talia is 8 months old today (5 months corrected) and celebrated this event by eating/wearing her first ever spoonful of sweet potato. In fact, it’s her first ever spoonful of anything “solid”, as she has rejected my previous efforts to feed her farex and pear, with an expression that clearly says “Mum, if this stuff is so good then please eat it yourself! Now where is my bottle?”

I’ve spent plenty of time in the last five months worrying about her lack of progress, both in terms of weight and development (especially in comparison to other babies of her corrected age), so today I am trying to look at what she has achieved so far.

Firstly, at 5kg she is almost 6 times her birthweight of 855g, which is pretty impressive even if she is well below the bottom line on her weight chart. She is also well on the way to doubling her original length, from 34cm to 60cm, which puts her respectably on the 10th percentile curve. And she must have some brains developing in there, because her head circumference is nearly at the 50th percentile. Go little Miss Pipsqueak Brainbox!!

I know we are as biased as any parents, but she is a cute little munchkin, and even more fun to be around now that she smiles at every opportunity, and starts to giggle when we play “Round and round the garden” or when we aim kisses at her. She has a very placid personality and rarely cries, except when she is hungry and we are slow with her milk!

Talia at 5 months corrected (8 months actual)Her hands are delicate, and have recently learned how to shake a rattle and how to grasp a handful of cat fur. Her little feet can now bear her weight, and she stands proudly on them while we support her. We are excited about the little milestones which are still not automatic for her – for example when she brings her hands together, puts something in her mouth, or reaches out to touch her reflection. We know she is a wellspring of potential and we roll her from back to side to tummy and back again, so that she knows it can be done once she decides she wants to try it for herself.

Sitting in a cardboard box, she holds her head steady and turns carefully with big, serious eyes to watch us moving around her. You can almost see her taking things in, absorbing new ideas. It will probably seem like no time at all and I will look back on this blog and laugh, because it will be me sitting in wonder and Talia running around me.

In the mean time, I will do my best to stay positive as she lags behind her peers, and to enjoy the little successes which make every day special. Even the ones which involve cleaning up after sweet potato.