Australia’s smallest baby is a living miracle

IF all had gone to plan, Elora De Bondi would have celebrated her first birthday days ago.

Instead, the gutsy Melbourne toddler – born almost four months premature and weighing only 319g – reached that milestone in January.

Ever since doctors told mother Adele her only child had “no chance of being born alive”, Elora has been a medical marvel.

Australia’s smallest surviving baby, Elora now tips the scales at 6.5kg and is charging ahead.

A thin feeding tube – and her place in the record books – are the only obvious clues to the 16-month-old’s dramatic start.

She spent her first seven months in the Royal Women’s Hospital. But Elora is now happy and relatively healthy at home in Montmorency.

Once “as long as a ballpoint pen”, she now stretches to 69cm and is not far off taking her first steps.

“She’s a very active and happy girl and very content. She loves playing and crawls like a speeding bullet,” Ms De Bondi said.

Since Elora arrived by emergency caesarean on January 29 last year, she has suffered “almost everything under the sun”, Ms De Bondi said.

Elora survived renal failure, chronic lung disease and many staph infections. Eating and swallowing are difficult because “she’s had so many tubes put down her throat”.

The Royal Women’s Hospital clinical director of nurseries, Sue Jacobs, said it was difficult to predict the quality of life for premature babies.

“Elora’s a bubbly, smiley and happy baby and that’s fabulous, but there’s still a lot of uncertainty about how she will be in the long term,” she said.

Ms De Bondi, 29, is now committed to supporting those who helped save her daughter, including the Royal Women’s Hospital Foundation and Life’s Little Treasures, a support group for Victorian families with premature babies.

To make a donation to the Women’s Foundation or Life’s Little Treasures, visit www.the womens.org.au and www.lifeslittletreasures.org.au.

Editor – Evonne Barry
Article from Herald Sun

Luke Shah’s a hero as scientists understand the premature brain

LUKE Shah is only five, but he’s set to help thousands of premature babies.

Born almost three months early, Luke is one of 138 Victorian children whose brains were scanned as newborns as part of a world-first study.

Six years into the project, researchers from Melbourne’s Howard Florey Institute are now sending their subjects, including Luke, back to the scanner.

The long-term aim is to match brain abnormalities in premature babies with the problems they typically face later in life – and then prevent them.

Scientist Deanne Thompson, who presented the study at last week’s international Human Brain Mapping conference in Melbourne, said the key was in monitoring the “white matter” that links the two sides of the brain.

“Premature infants have a reduced connection between the two hemispheres and often have difficulties with thinking, reasoning, problem solving and language,” she said.

“So if we can identify that a baby is likely to have certain learning difficulties, for example (by looking at their brain scan), treatments such as speech therapy can be targeted to them early.”

Editor – Evonne Barry, Health reporter

Article from Herald Sun 

Outcry over intensive care shortage for babies

THE state’s most fragile newborns are being sent interstate because Victoria’s neonatal intensive care units are stretched to breaking point.

Over the past week, Victoria’s 72 neonatal intensive care cots have been full, forcing dangerously premature babies or mothers with high-risk pregnancies to be flown interstate for life-preserving care.

Four acute babies or mothers with high-risk pregnancies have been flown to Canberra or Adelaide in the past fortnight.
At the same time, the Brumby Government celebrated the opening of the new $250 million Royal Women’s Hospital, which has been widely criticised for being too small to cope with a rising birthrate.

The Department of Human Services yesterday revealed that 12 newborns from regional areas, who would normally be treated at Melbourne hospitals, had been flown interstate for care in the past year.

This was up from just three in 2005-06 and nine in 2006-07.

The new Royal Women’s is equipped with 18 neonatal intensive care cots but can accommodate an extra two when stretched — the same as the hospital it replaced.

Newborn Emergency Transport Service state medical director Dr Michael Stewart said the system was under pressure from a surge in demand.

He said no babies had been harmed by the recent journeys.

“It is obviously not ideal to have to do this, but we are looking at what is the safest and most effective for the whole system at the time as well as being very cognisant of the individual baby and their families,” he said.

“I don’t think in the ideal world it is good to move an adult, a child or a baby from one hospital to another or out of the state if they need intensive care, but the reality is that is occasionally what we need to do.

“These peaks can last for a few days to a week or so, sometimes they last several months, but the tip of the peak we hope just lasts for several days because that does get very difficult to manage.”

The new $1 billion Royal Children’s Hospital will have an increase in its number of neonatal intensive care cots when it is completed in 2011.

Monash Medical Centre and Mercy Hospital for Women are the only other Victorian hospitals with units to sustain the dangerously premature newborns who need help to breath.

Dr Stewart said the state usually coped with less than 60 babies needing intensive care at any one time and “cot-block” had improved since 2000 when there were just 48 Victorian neonatal intensive care unit cots.

But Royal Australian and New Zealand College of Obstetricians and Gynaecologists president Christine Tippett said there were simply not enough neonatal intensive care cots to meet demand.

“The four units are constantly running at or near capacity and the pressure on staff and equipment is at an unsustainable level,” she said.

Department of Human Services spokesman Steve Pivetta said babies in border areas were often closer to interstate hospitals and denied a lack of resources was to blame.

Editor – Grant McArthur
Article from Herald Sun

premature baby born 3 months early

MILICA shouldn’t be here yet. This five-week-old baby, born three months’ premature, should still be a kick in her mother’s belly and a half-decided name. Now her home is a plastic tub, a mess of monitor wires and a tube pressing air into her lungs.

Next Saturday she’ll have her second unexpected change of address, as one of the first babies to move from the old to the new Royal Women’s Hospital, which was officially opened yesterday. A team of specially trained paramedics will carefully lift her from her cot in the crowded intensive-care nursery of the dark and ageing Carlton premises.

Strapped to mobile life-support machines, the tiny 862-gram package (already 300 grams heavier than when she was born) will move three blocks down the road to the $250 million Parkville building, with its bright, spacious wards. There she will continue her fight towards independence.

Compared with Milica’s story so far, the move will be a walk in the park. Twelve years ago her mother, Fiona Nika, 36, of Hillside, was told she could not have children. She and husband Branko accepted it. “We raised dogs and so forth.”

Then, two weeks before Christmas, they were told they were expecting a child. That shock was enough. But five months later Mrs Nika woke in pain and the local hospital diagnosed severe pre-eclampsia.

Within hours she was at the Royal Women’s, being told her 26-week baby would have to enter the world in order to save both their lives. Doctors kept Milica inside Mrs Nika as long as possible: when a baby is this premature, every extra day in the womb adds to their chance of survival. But Mrs Nika’s condition worsened and Milica started to struggle. “It was touch and go for both of us,” Mrs Nika says.

Her husband remembers Milica being taken out. “There was no noise at all,” he says. She wasn’t breathing. Doctors forced air into her throat. For a moment, she started breathing and gave a tiny squeal. “That was the first time I thought she was going to make it.”

Groggy from the caesarean, Mrs Nika caught a glimpse of her daughter as she rushed past to intensive care. “I just saw this shape — ‘Oh, she looks pretty’ — then they took her.”

Mrs Nika says next weekend’s move will be one of the longest days of her life, as she waits to hear that her “little miracle girl” is safely at Parkville. “It will be the longest time I haven’t seen her … Come 6 o’clock (when parents are allowed into the new hospital) I’ll be kicking the door down.”

Article from the age

Premmie Children’s Rose – National Premmie Day

rose-form1.JPG

To purchase your roses please visit

www.prembaby.org.au

PREM OF THE MONTH – JUNE

Lily, Ruby, Maddie and their mum Lucinda

Where was Lily born?
Lily was born at the John Hunter Hospital, Newcastle. I was transferred there from North Gosford Private once they realized there were complications. We also spent a week in the Childrens Hospital at Westmead while she underwent cardiac surgery for a Patent Ductus Arteriosus.

What was her gestation and birthweight?
30 weeks and 1300 grams

Do you know why she was born premmie?
Lily had major complications in utero, in addition to the fact that I have an irritable uterus and my placenta started to fail, resulting in IUGR.

How long was Lily in hospital?
NICU for 1.5 months, SCN for 1.5 months. 3 months less one day all up. She came home weighing 2kg.

Other interesting stats?
CPAP for 24 days (due to PDA we just couldn’t get her off it!) then low flow oxygen for 6 months. She finally came off it on the 1st of March 2007.

What do you remember most about your NICU journey?
Now I mostly remember how fantastic the hospital staff were to me and my family and continue to be today. At the time it was so unbelievably hard you wouldn’t wish it on your worst enemy but the bad memories have faded with time and now we are just thankful that the wonderful doctors didn’t ever give up on our precious baby.

What has been your proudest moment since Lily came home?
Probably when she started walking. She has only just started in the last two weeks and we were told that she wouldn’t walk for a very long time. She continues to prove us all wrong with her strength and determination!

How did it feel to be pregnant again with a high risk of premature birth?
Terrifying! I really wanted to have the “normal” experience I had missed out on the first time around. But then as each day passed I began to prepare myself for another NICU or SCN journey.

At what gestation and weight were your twins born?
35 weeks, 1800 grams and 2400 grams

Any idea why they were born prem?
Maddie (the bigger twin) was hogging all the nutrients so Ruby developed IUGR. The doctors were concerned about how healthy she would be if she remained in utero so they booked me in for an emergency c-section. The day I went in to have them I ended up in labour! Both were born via c-section that day which was lucky as Ruby was badly tangled in her cord.

How did it feel to be back in the Special Care Nursery with your twins?
It was hard too, obviously not as hard as when Lily was born but I had to have my twins at a different hospital than the one I had had Lily at and having to learn the different processes really got to me. I guess in a way I felt I knew how to do it all so didn’t need someone making me do it a different way. The nurses were used to parents that were unsure of their tiny babies whereas my husband and I were confident and experienced with little our babies.

Also the hospital didn’t make any exceptions for the fact that my babies were in SCN. I was put in a ward with 5 other women and their babies and listened to their babies cry all night while mine were a 1km walk away (which I couldn’t do as I had had a bad c section). Because I didn’t have a screaming baby with me I was left to my own devices a lot, which also meant I could wait up to an hour to have a nurse just answer my call button.

One of the biggest challenges was having Lily as well. I lived at the hospital for 2 weeks until I could bring the twins home (weighing 1900 grams and 2500 grams) but I felt guilty as Lily wasn’t coping very well at home without me so there was that challenge too.

What is your top tip for other mothers of premmie babies?
I guess I could say try and “normalise” things as much as possible. So cuddle your baby/s as soon as you can and feed them, and bathe them and just love them, even if they feel tiny and fragile and you are scared to touch them in case you hurt them. They need to know you are there for them from the very beginning.

premature baby twins