Premature Birth Video

This was a video that i was forwarded by a friend today. I think it is beautiful and it’s great how it shows not only pictures but some understanding about premature birth, premature babies and parents journeys through the NICU.

Ex Lil Premature Baby Walking

I can’t believe it has finally happened. Ronan has starting taking leaps and bounds with his walking. He is now 22 month (19 months corrected)

Here is a short video of him walking.

(sorry about the video quality)

Young Shaeley Moody brings dream to life for Tracy, 40

SHAELEY Moody is worth every second of her proud mum’s agonising wait.

After 18 years of trying to have a baby, encompassing four failed pregnancies and a horrific car accident, Tracy Moody, 40, still can’t believe it when she looks at her tiny, fragile daughter.

Shaeley was born 15 weeks premature and weighing less than 700g last Thursday. premature baby, born early, mercy hospital, premmie, born too soon

“I still can’t fathom that I have had her, having waited so many long years. She is so precious. She is like a miracle for me,” her mother said.

“She is perfect. She is all there — 10 fingers and 10 toes, and she is all mine.

“It has always been my dream of having a child, because I love kids to death.

“For 18 years, it was hard to keep faith, but if you have a dream you have to follow it and not give up. So that is what I did, and she is the end result: my precious miracle.”

Yesterday Shaeley’s underdeveloped lungs began working for the first time.

Staff in the Mercy Hospital for Women’s neonatal intensive care unit took her off a ventilator and put her on a continuous airway pressure machine to boost breathing.

However there will be plenty more nervous times over the next three months as Shaeley battles complications from her early birth.

Fighting for a child is nothing new to Ms Moody. By 1997, she had already suffered three miscarriages and an ectopic pregnancy.

Two days before Christmas 1997, as she was organising her first round of IVF, she suffered severe injuries to her left leg, lower back, neck and right shoulder in a car crash.

As she learnt to live with permanent disabilities, she was told she could never become pregnant. But for the next 11 years she tried, never giving up hope.

She said she almost collapsed on learning she had become pregnant naturally, and accidentally, last year.

However from the first day, there were complications. And her disabilities meant she could not give birth naturally; an emergency caesarean was done after six days of a dangerously early labour.

“It took me about three months to realise I was pregnant, and then all of a sudden she was here. She hasn’t given me much to time comprehend conceiving her,” Ms Moody said.

“It was touch and go, so I just thank God for every day she is here. And she seems to be getting stronger and stronger. It’s prayers every day and fingers crossed.”

The Mercy has organised Melbourne accommodation for the Alexandra resident so mother and daughter can spend every day together.

Ms Moody said she suffers panic attacks every night when she leaves the hospital.

“Emotionally, it just drains you,” she said.

“If you want something bad enough, you will wait and you will keep the dream alive. And that is what I have done.”

Article & photo from: Herald Sun

Three premmie wishes for 2008

Talia the kitchen fairy would like to make three wishes for all premmie babies for the New Year.

(Talia became a kitchen fairy by accident, after she discovered a fabulous magic wand in the cutlery drawer. It has special holes in it to make sure the magic comes out nice and evenly.)

First wish: to all premmie babies still in hospital – may you breathe strongly, grow healthily, receive the best possible care and come home soon

Second wish: to all premmie babies at home – may you eat to your mother’s content, play joyfully, sleep with your head full of growing dreams and find wonder in everything

Third wish: to all premmie angels – may you be remembered always with love

And a little bit of premmie magic to everyone who reads this!

Kitchen fairy

Premature Babies: Growth and Development

Your baby’s first year is a time of great change, just as it would be if she had been born on or near her due date. A child’s development is a complex, ongoing process. No two children mature at the same rate or in the same way. Development even varies from day to day and week to week. Over time, you will get to know your baby as an individual.

Because your child was born early, you should think of her progress in terms of “adjusted age.” For example, if your baby was 8 weeks early, adjust your expectations by 2 months. Therefore, a 4 month old premature baby may act like a full-term 2 month old. Try not to compare your child with full-term babies or focus too much on developmental charts. Your pediatrician will follow your child’s developmental progress.

If there are any developmental problems, the important thing is to catch them early, so that your child can be helped to adapt.

Some problems can show up right away; others do not show up for some time. You are in the best position to monitor your child’s development. Become familiar with your child’s general pattern of development, and if you think your child is showing signs of a hearing, vision, speech, muscle or learning delay, see your pediatrician as soon as possible. Early intervention programs that work with children from birth to 3 years may do a lot to lessen any long-term effect on your child’s learning.

One of the most important things you can do for your child is to make sure he receives all recommended check-ups and immunizations. Check-ups will help make sure your baby’s growth is on track, give your pediatrician a chance to catch any health problems early, and help you get your questions answered. If your baby has trouble gaining weight, has breathing problems, or any other problems that are of concern, your pediatrician may wish to see your child more often.

Immunizations can make sure your child’s health is not put at risk by serious childhood diseases, such as whooping cough, hepatitis, and meningitis. These diseases can cause death or leave your child with long-term health problems.

Some parents think their children do not need immunizations until they enter school. Actually, they should start when they are infants. Children should receive most of their immunizations during their first 2 years.

Most premature infants need to receive their immunizations at the same age as full-term infants, unless your pediatrician feels that this is not appropriate. Your pediatrician can help you make sure your child’s immunizations are given on time and are up-to-date.

Article from MedemĀ 

American Academy of Pediatrics

Prem Of The Month

Each month we will be featuring a premature baby for “prem of the month” in our newsletters.

“Miss January” is Talia Rivka and her mother Kathryn

Where was Talia born? KEMH in Perth

What was her gestation? 26 weeks, 6 days gestation

And her birth weight? She was 855g – now at 6 months corrected she’s finally over 5kg, woo hoo!

What do you remember most about your NICU journey?
Wondering if Talia would ever come off CPAP. Struggling to breast feed. Singing songs through the humidicrib window. Wonderful kangaroo cuddles. Pumping, pumping, pumping…

What might the NICU staff remember about you?
I was the mother who refused to give out my premature babies name for 5 days while I waited for my husband to come back to Perth. Even now there is a nurse who still asks after “Tic-tac”.

What has been your proudest moment since Talia came home?
Talia has some developmental delay (for example she is still not rolling) so we don’t take anything for granted, and every little milestone is a real buzz for us. Recently she figured out how to stay sitting up and we were just ecstatic. And I’m still producing a little bit of breastmilk for her, which is borderline miraculous given my problems with supply.

What is your top tip for other mothers of premmie babies?
Take lots and lots of photos of your premature babies – and make sure you keep a copy of them somewhere safe. I lost a lot of photos when my computer died and I didn’t have a backup. Also I wish I’d kept a journal, even if it was brief, because all those vivid early memories which I thought I would never forget are starting to dim now that time is passing and so many new memories are being created as Talia grows.

kathryn-talia.jpg

If you wish to receive our newsletters so you can read the journey of next months premature baby you can register here and if you would like to see your premature baby as “prem of the month” please email admin@lilaussieprems.com.au