18 Month Assessment For Premature Baby

When we were visiting Ronan’s paedatrician last week he reminded me that i had to fill out an 18 month assessment form. The form wasn’t to be filled out until Ronan reached 18 months (corrected) because otherwise the assessment wouldn’t have been fairly marked.

Whilst going through the questionaire and everytime i ticked “no” to the questions my fear of more delays reared. The questions were along the lines of;

  • When putting a crayon in your child’s hand and a piece of paper in front of them do they put the crayon tip on the paper (no – he tries to eat it)
  • Does your child try to offer their reflection in a mirror the toy they are holding (no – he smiles at himself then looks at me)
  • Does he use words put together BUT (not common words ie: no more, where’s dad, all gone), (they are the sort of things he says so maybe he doesn’t know how to speak!)
  • Does your child go and get a toy or object when told to (nope – he can’t even walk let alone go and get a toy for me but he did hand me my towel after a shower)

It will be interesting to see the results. Because of the lack of “yes” responses to the questions i am sure he will have to have speech therapy, brain therapy, child therapy ALL dam therapies because he is slow!! Whilst questionaires are great so professionals can assess where a child is, being a parent of an ex premature baby i am now worried about there being a major problem. One thing with a questionaire is that it asks the questions about things your child should be doing but it doesn’t cover questions of what they actually are doing so whilst you may feel that your child is ahead in some things i now feel that Ronan is far more behind than the average 18 month old so the stress and worry has kicked in again. I wonder if premmie parents ever get a break from worrying?

My Lil Premmie Finally Walked

After countless hours and months of frustration my little man walked.

We have had a long and hard battle with Ronan when it comes to his milestone delays. At 6 months corrected we were told that he needed physiotherapy. This really upset me and i felt the guilt flood back to when he was born prematurely. The guilt of Ronan being born so early took quite a long time to get over so to now be told that our child was physically challenged really took the cake.

To see him roll, crawl, stand up were such proud moments for us even though they were very delayed. I know each parent is shocked, suprised and overjoyed when their full term babies reach a milestone, then you can only imagine the elation a parent of a premature baby must feel.

I am still in a state of disbelief but Ronan walked about 10 steps from the door to me last week. Ronan has been taking little “risks” by walking from lounge to lounge by taking 1 step without support so this is the first time he has ever taken the leap!! Talk about lets get in as many as we can in one go!! He was SO excited that he was giggling.

To come from an ex 27 week premature journey to finally seeing your toddler start making the move towards walking is an overpowering feeling. Hopefully in a few years to come we will be able to turn around and say “what milestone delay”?

Premature Baby Photos

View these amazing photos of premature babies whilst in the NICU/SCN and beyond.

http://www.lilaussieprems.com.au/12/angelicas-gallery/

http://www.lilaussieprems.com.au/11/talia-rivkas-gallery/

http://www.lilaussieprems.com.au/11/ronans-gallery/

http://www.lilaussieprems.com.au/11/talias-gallery/

http://www.lilaussieprems.com.au/11/charlies-gallery/

http://www.lilaussieprems.com.au/12/alexanders-gallery/

http://www.lilaussieprems.com.au/11/brendans-gallery/

http://www.lilaussieprems.com.au/11/charlottes-gallery/

http://www.lilaussieprems.com.au/11/deegans-gallery/

http://www.lilaussieprems.com.au/11/nixons-gallery/

http://www.lilaussieprems.com.au/11/hunters-gallery/

http://www.lilaussieprems.com.au/11/tims-gallery/

Premature Birth Stories

Here is a collection of beautiful premature birth stories from parents around Australia. These inspirational premature birth stories will make you cry & cheer with delight as you read the journeys that these beautiful little premature babies endured.

http://www.lilaussieprems.com.au/10/lanes-story-born-at-26-weeks/

http://www.lilaussieprems.com.au/10/talias-story-born-at-26-weeks/

http://www.lilaussieprems.com.au/11/charlies-story-born-at-27-weeks/

http://www.lilaussieprems.com.au/10/ronans-story-born-at-27-weeks/

http://www.lilaussieprems.com.au/10/izabella-roses-story-born-at-31-weeks/

http://www.lilaussieprems.com.au/12/nixons-story-born-at-32-weeks/

http://www.lilaussieprems.com.au/10/jacks-story-born-35-weeks/

I Have Been Nominated!

For “Volunteer Of The Year” with my local council!!!

I do not know who nominated me but i just received a letter in the mail that i need to attend a ceremony on Australia Day for the announcement of winners. It does say that i was nominated for all the hours or hard work and dedication i have put into helping premature baby charities and my good will.

I have had a very busy year i have to admit. Creating L’il Aussie Prems was my first challenge. Whilst it is easy to create a website i needed the media’s help with getting the word “out there” that the site is here. The advice i have always been given is “people will not go to your site if they do not know it exists”. I have been very lucky within the media circle and i cannot thank the media enough for their help. You can view the media articles i have so gratefully received HERE.

In June i organised an event in my area for the first ever National Premmie Day. It was a great success and we had over 35 people attend the morning tea. Through this event i came into contact with Lifes Little Treasures.

In July i joined the committee for the Melbourne group Lifes Little Treasures. I joined their committee and earned the role of “webmaster”. I created their website and had great fun in doing so.

In August this year i became a part of the committee for the National Premmie Foundation. I also created their website and whilst it took a good month to get it online i was very happy with the results.

In between creating websites i also attend morning teas here in Victoria for not only Lifes Little Treasures but also my own personal premmie playgroups. I am actually creating a new website for another one of Australia’s prem support groups so things never slow down for me.

I do not know what i would be doing in my life path had my son not been born prematurely. I was not aware of the “premature life” but i would not change it for the world. I love helping people and it is a passion that i hold close to my heart. I always have time to help people and love every minute of it.

I know that i will be up against many many inspirational people within the community and whether i win or lose is not important to me, knowing that i helped make a difference to people’s lives is.

L’il Aussie Prems Forum

Wow the forum has been really CRAZY over the past month. There are now 261 members and it is great to see so many join each month. The forum has been a great support for many parents like myself and everyday it is turning into a little online community. Members are becoming friends, meeting for lunch or just coffee (i am jealous that i cannot meet everyone) but that is what makes the forum such a great place, the diversity of the members and also the fact that members are from within Australia or afar.

I set up the forum with as many categories as possible to cover a wide range of main topics. From the gestation from when your baby was born to feeding, birth complications, milestone setback and delays which a lot of premature babies face, general chatter and game threads. The forum was set up not only for support but also to encourage friendship and communication for those who may live hours away from a town which is why i wanted the forum to showcase a range of areas not just premature baby related sections.

I encourage everyone to join! Many of the members have had premature babies born from 23 weeks to 36 weeks all due to different complications (pre-eclampsia seems to be in the running for the most cause of premature birth).

We would love to see you on the forum. You can join www.lilaussieprems.com.au/forum

If you feel that you may wish to share information and progress with your family and friends you can also create your own blog www.lilaussieprems.com.au/bloggers