Dealing with four month milestone delays

Our daughter Talia recently had her first developmental review, at four months corrected. Prior to meeting the paediatrician, we completed a questionnaire asking where she was in terms of gross and fine motor control, social/communication, problem solving skills and so forth.

As a 27-weeker with a relatively smooth journey through the NICU (no major complications other than 11 weeks on CPAP), we thought she would be progressing normally for her corrected age. However, as we went through the questionnaire, we found ourselves ticking more and more “not yet” boxes. For example, she wasn’t reaching for things, playing with her hands or feet, putting objects in her mouth or putting any weight on her feet.

Consequently it was not particularly surprising when the paediatrician told us that our “four month old” was presenting as a three month old, in terms of development. I had thought I might feel upset or worried, but actually I just felt relieved that she was not being diagnosed with cerebral palsy or anything more serious. Yes, she is behind where full term babies are at four months, but then that is hardly surprising.

Today I took my daughter to a regular check up held by the physiotherapy department at the hospital where she was born, and that is when I really felt miserable. Babies who were roughly the same size when we were in the same ward seven months ago have raced ahead. They have grown further and faster than Talia, and they are reaching, playing with both hands, rolling. I should feel happy for the mothers of 24-weekers that their babies are doing so well; and really I shouldn’t be comparing at all, but I can’t help it. I so desperately want everything to be OK with Talia.

Around healthy full termers it is easy to justify that she’s behind because she was prem. Being the last in a group of prems is a much harder pill to swallow.

Bonding with my (micro) premmie Part 1

On my first day of full time, solo parenting I managed to clip the tip off of Miss E’s big toe while trying to trim her toenails—I’ve not touched baby nail clippers since that day. I think that was one of the first times I’d ever really felt like her mother. I’d made, what seemed like, this huge mistake and there wasn’t a nurse hovering over my shoulder to fix it up for me.

If bonding with a healthy, full term baby is difficult than bonding with a premmie must be a whole different ball game. This is the story of my attempts at bonding with Miss E while in the NICU.

Miss E was born via emergency caesarean due to severe preeclampsia. I’ve said before that after she was born they pulled her resuscitaire up beside me to show me her face. What I didn’t say was that I really didn’t care. I don’t know if it was a result of the drugs or an emotional response, but it’s a great source of shame, sadness and disappointment for me. I never expected to react like that to the first time I saw my own baby. After that she was whisked away and I didn’t see her again, while lucid, until two days later.

I barely remember seeing her that time, even though the drugs had worn off and the addled knowledge that I was going to die mingled with a desperate need for sleep had gone away. Two days later I sat by her Perspex box in a wheelchair because I still couldn’t get my legs to work, swallowing back tears as Miss E’s nurse uncovered her isolette and lowered it so I could see in.

There, in a nest of wires and tubes, was my little girl and I felt nothing but fear. How do you bond with a creature that looks nothing like any baby you’d ever seen? A baby you’re afraid to touch because her skin is so fragile that it tears when she has her diaper changed and you can’t bear to cause her more pain. Even if you wanted to touch you can barely see enough skin to make contact.

Beyond just the physical limitations I was still dealing with the loss of my pregnancy and the birth I so desperately wanted. Not to mention shock. I think I lived in a bubble of shock and fear for two weeks. Afraid to touch or even talk to her with the portholes open in case I was sick and didn’t know. My mantra became “you’ll never forgive yourself if she dies because of you”. I don’t know how much time I spent making up excuses to not go to see her. I would have done almost anything to stay away from that horrible place.

The next four weeks were spent in a blur of expressing breast milk, containment holding and reading fairytales. I thought I was bonding. At the very least I wasn’t avoiding her.

Part 2 to come.

Helping Premature Babies Breathe Easier

I was forwarded a link to the Australian Synchrotron Science about a case study being performed by ~ The University of Queensland.

This is the information they provided on their website:

We need a layer of natural lung surfactant NLS that is just 1 molecule thick to breathe. Premature babies lack NLS.

  • Animal-based and synthetic alternatives are used to help babies breathe but better treatments are needed.
  • A team at The University of Queensland has used synchrotrons in the USA and Japan to provide critical information for understanding the structural changes that take place in NLS every time we breathe.
  • The aim is to create a safe, effective artificial lung surfactant that could be used to help premature babies and adults with lung problems.

Ronan was born with Chronic Lung Disease and was on oxygen for 3 months. I can only imagine how much better his lungs would have been had this been available when he was born. If successful this would be a HUGE step towards helping a premature baby and his/her lungs. From my understanding one of the biggest complications/issues with having a premature baby is their lungs because of the lack of lung surfactant if the baby is born before 30 weeks, although i could be wrong with my gestation calculation. The university is doing an amazing job and i look forward to hearing about it’s release here in Australia in the years to come.


invisible hit counter