Inspirational Premature Babies Born at 33 Weeks Gestation


Read the inspirational stories of courage and fight for survival from these amazing premature babies born at 33 weeks gestation throughout Australia including advice from their parents.

Premmie Babies Name: Emma
Gestation Born: 33+6 weeks
Weight When Born: 1490gms
Length When Born: 38cm
Current Age: 8yrs in November
Current Weight Now: 21kgs
Babies Outlook/Ongoing Issues: She has a VSD (hole in her heart) she suffers from asthma and has lots of bowel troubles. She had hernia repair early this year.

Premmie Babies Name: Nixon
Gestation Born: 33+3 weeks
Weight When Born: 2296 grams
Length When Born: 48cm
Current Age: 3yrs 4months
Current Weight Now: 16kgs
Babies Outlook/Ongoing Issues: Nixon is speech delayed and currently having speech therapy.
He is in the process of being seen having tests etc as a number of professionals (paed, CHN, Speech Pathologist, GP) think he may be on the Autism spectrum. No diagnosis yet but he is having behavioural problems. It could be due to a seizure at birth which was a grade 2 haemmorhage in his left ventricle of his brain. Otherwise he is going very well, he continues to grow infront of my eyes!

Advice From Parents: Talk to other parents in the NICU, everyone is going through the highs and lows of having a premature baby and the support of someone who knows the hurdles and struggles of the hospital journey is comforting. They may become a life long friend.

Premmie Babies Name: Nakita
Gestation Born: 33+ 4 weeks
Weight When Born: 2350grams
Length When Born: 45.5cm
Current Age: 16 1/2 months
Current Weight Now: 10.69kg
Babies Outlook/Ongoing Issues: Nakita had a relatively smooth run through SCBU, coming home at 35 weeks 1 day, weighing 2170grams, she was a slow gainier with weight, but once she started on solids she started to really put on weight. At 11 1/2 months she wasn’t rolling, only siting very straight, and was fearful of moving out of her comfort zone. She was assessed and diagnosed with hypermobility and for the past 5 months we have been attending weekly physio sessions, which have made a huge difference as she is rolling, crawling and has jsut learnt to pull to stand. She has had 9 respiratory infections during her second winter, requiring 4 hospital visits and 2 stayd requiing oxygen. She has atelectasis of the right lung, either caused from her early arrival or one of the respiratory infections she has had in recent months. The Paeditricians believe she should grow out of it by the time she is 3, but during winter will likely encounter further repiratory issues.

Advice From Parents: Take plenty of photos, enjoy the little milestones and there is a light at the end of the tunnel.

Premmie Babies Name: Charlie Piper
Gestation Born: 33+5 weeks
Weight When Born: 2020 grams (4 pound 7oz)
Length When Born: 48 cms
Current Age: 6 weeks
Current Weight Now: 3 kgs !!! 6 pound 6
Babies Outlook/Ongoing Issues: So far so good, eats like a horse .. sleeps like a ‘baby’ .. can hold her head up and tries to roll from her back to her belly ..

Advice From Parents: Ask as many questions in hospital as you can… i learnt more from them then any book or website told me.

Premature Babies Name: Bryan Lucas
Gestation Born: 33 weeks
Weight When Born: 2.2 kgs
Length When Born: 26cms
Current Age: 5 days
Current Weight Now: 2.5 kgs
Babies Outlook/Ongoing Issues:
He is still in the hospital. Once he is feeding and off the oxygen we can bring him home.

Premmie Babies Name: Ella
Gestation Born: 33 + 5 days
Weight When Born: 2.2kg
Length When Born: 46cm
Current Age: 7 1/2 months
Current Weight Now: 7.4kg
Babies Outlook/Ongoing Issues: Ella is doing really well and we’ve not had many problems arise. She is a little slower achieving her physical milestones such as rolling but mostly this is due to tight muscles in her neck. We are currently seeing a physio and working on strengthening her muscles for these skills. She started solids at 4 months and has done brilliantly since then.

Advice From Parents: Keep a diary with photos – I took a photos everyday she was in hospital! Not only does it help to get some of those feelings out but it reminds you of everything that happened. It’s a dramatic time in your life and its amazing some of the things you forget!

Premature Babies Name: Abi
Gestation Born: 33+5 weeks
Weight When Born: 2lb 5oz
Length When Born: 40 cm
Current Age: 5 years, 3 months
Current Weight Now: 19 kgs
Babies Outlook/Ongoing Issues: no ongoing issues. vision, hearing and motor skills all normal. speech excellent!

Advice From Parents: don’t ever lose hope.

Premature Babies Name: Oscar Henry
Gestation Born: 33 weeks
Weight When Born: 1440g
Length When Born: 40cm
Current Age: 8 months
Current Weight Now: 6.89kg
Babies Outlook/Ongoing Issues: When Oscar was 2 days old he had a pneumothorax and later discovered he had a cystic area on the bottom half of his right lung which required a lot of time on Oxygen. We spent 42 days in hospital (10 in NICU and 32 in SCN). He is a little fighter and is doing really well, and just about to start at daycare as I need to return to work. We received great results from our specialist and paed with no ongoing issues at this stage.

Advice From Parents: Always ask lots of questions if you are unsure of anything. I found other Mums and Dads in NICU and SCN were great to talk to as they understand what you are going through.
Love and best wishes to all our special little prems.

Premature Babies Name: Charlotte-Amelie Lee
Gestation Born: 33+6 Weeks
Weight When Born: 1705 grams
Length When Born: 42.5cm
Current Age: 4 years
Current Weight Now: 14.5 kgs
Babies Outlook/Ongoing Issues: At 4 months old Charlie’s paediatrician had just told me not to expect my premmie to catch up to normal babies until at least a year old, but then in the same breath he told me that she was a perfectly normal baby and didn’t give me any more appointments.
Charlotte-Amelie reached all her milestones as expected and is now above average in height. She was low birth weight as well as premmie.

Advice From Parents: Take it 1 step at a time, 1 day at a time and be positive!

Premature Babies Name: Caleb
Gestation Born: 33+5 weeks
Weight When Born: 2500 grams
Length When Born: 46.5cm
Current Age: 4 1/2 years
Current Weight Now: 21kg
Babies Outlook/Ongoing Issues: Caleb has a phonological speech disorder and fine and gross motor planning difficulties. What this means is he has trouble with articulation but not language and is a bit clumsy and has trouble writing and colouring like other kids his age. His speech disorder may not be due to being premmie as his brother born two weeks later in gestation also has it but to a lesser degree. He is smart and picks things up easily once they are taught to him. From talking to other mum’s of babies around this gestation,most of the babies have done really well and have overcome the challenges they faced.

Advice From Parents: Believe in your own abilities as a parent (even if it is your first child).Ask questions to gain a greater understanding, question things you don’t think are right and know that even if you are forced to give birth in a certain hospital due to gestation your baby can transfer to a hospital of your choice when they are ok to travel. Be your babies strongest advocate even if you are feeling unsure.

Premature Babies Name: Blake
Gestation Born: 33 weeks
Weight When Born: 1.72kgs
Length When Born: 41cms
Current Age: 8 months old
Current Weight Now: 6kgs
Babies Outlook/Ongoing Issues: My water broke at 31 weeks PPRM (Preterm Premature Rupture of Membranes) but I kept him in for another 2 weeks so he had both steriods shots for his lungs and I gave birth naturally (with gas) to a healthy baby. I had a manual removal of my placenta as it did not come out naturally after the birth. Blake was in the humidicrib for about 1 week to keep his body warm (so he didn’t have to expend the energy doing that). Blake was treated for jaundice in hospital a few times but he has no ongoing issues other than that he is smaller than others his age and corrected age. He was tube fed formula and EBM and spent 4.5 weeks in hospital where I breastfed and bought him home half breast and half EBM bottle fed. I later moved him from 3 bottles a day to 1 over the course of a month or two and he still has 1 EBM bottle every day or so to encourage weight gain. We are getting ready to start solids as he is 6 months adjusted age.

Advice From Parents: Take lots of photos and videos, especially for when you are at home and bub is in hospital. Don’t be scared when you take your bub home and start being full time because I found he was well trained.

Premmies Name: Charlotte-Amelie Lee
Gestation Born: 33+6 Weeks
Weight When Born: 1705 grams
Length When Born: 42.5cms
Current Age: 4 Years Old
Current Weight Now: 14.5 kgs
Babies Outlook/Ongoing Issues: At 4 months old Charlie’s paediatrician had just told me not to expect my premmie to catch up to normal babies until at least a year old, but then in the same breath he told me that she was a perfectly normal baby and didn’t give me any more appointments. Charlotte-Amelie reached all her milestones as expected and is now above average in height. She was low birth weight as well as premmie.

Advice From Parents: Take it 1 step at a time, 1 day at a time and be positive!

Premmies Name: Charlie Cooper
Gestation Born: 33 weeks
Weight When Born: 2090 grams
Length When Born: 40cms
Current Age: 26 months
Current Weight Now: 11 kgs
Babies Outlook/Ongoing Issues: It was known that our little guy would be born early, so all steps were taken to give him the best chance. After lots of bed rest we got to 33 weeks. Charlie was fairly well at birth but did need quite a lot of attention during the first 10 days or so. After that…all good. Was home with us after 5 weeks in SCN. We have just celebrated his 2nd birthday and apart from being a little on the short side, he is doing well. A precious edition to our family..

Advice From Parents: Ask every question you think of. Don’t not ask because you think it sounds silly. The best advice often came from Mums and Dads travelling the same journey in NICU / SCN.

Premmies Name: Addison and Madelyne
Gestation Born:33+5 weeks
Weight When Born:1587 and 1597 grams
Length When Born:
Current Age:11.5 months
Current Weight Now: 9kg
Babies Outlook/Ongoing Issues:Addison and Madelyne were in isolettes to maintain their body temp for 8 days, then they stepped out into their big bed, which they shared until we came home 5 weeks later. Addison had a low neutrophil count which corrected itself, and Madelyne has an ASD (hole in the upper heart) which is monitored annually by her heart specialist. Both girls started rolling at 4 months, crawling at 6.5 months, pulling themselves up to standing position at 9 months and are now walking around the furniture at 11 months. Addison stands without holding anything at 11.5 months. Our cheeky little monkeys!!!

Advice From Parents:I was flown 12 hours from home, so hubby wasn’t at the birth of the first additions to our family. I was set up at the Ronald McDonald House, where I had a lot of support from the counsellors and other parents with prems staying there also. I decided early that I must make the most out of the experience, and took on as much responsibility as I could with the girls. I made friends with the Mums and Dads who shared our room, who were also moved around with me to the next rooms (good strategy by the fantastic hospital staff to keep me sane I think). My advice would be – don’t be afraid to share your emotions, it’s all new and very frightening (and we all freak out a little bit), ask lots of questions, and most importantly, utilise the support networks who are available to help make this experience as easy as possible – hospital staff, other parents, visiting organisations, counsellors, etc. Remember, you’re not alone, and at the end of it all, there is NO BETTER FEELING than going HOME!!!

Premmies Name: Styliani Maria
Gestation Born: 33+6 weeks
Weight When Born: 2.3kg (5lbs 4oz)
Length When Born: 49cms
Current Age: 15 weeks
Current Weight Now: 6kgs
Babies Outlook/Ongoing Issues: I went unexpectedly into labour at 33+6w. I had my first contractions at 12, my waters broke half an hour later and she was born before 2. Labour and delivery was terrifying. I didn’t know what was happening at all and was convinced that the baby would die. Of course, she didn’t, but nobody in the hospital paused for a moment to say “yes, your baby is fine, and the prognosis should be good.”

Noula was small at birth(2.3kg), and had jaundice. She had light therapy for three days, but didn’t stay in the NICU at all. She was difficult to feed at first, but we persevered and she is feeding normally.

She is almost four months old now and has caught up to full term babies in terms of weight. She has no developmental or health issues so far.

Advice From Parents: Make sure you ask lots of questions about what happens in hospital! Don’t be afraid to touch and hold your baby, no matter what the gestational age.

Premmies Name: Lucie
Gestation Born: 33+2
Weight When Born: 2.3kg
Length When Born:
Current Age: 18months/16months corrected
Current Weight Now: 10kg
Babies Outlook/Ongoing Issues: Born with a Right Side Diaphragmatic Hernia.. Has had 2 surgeries and has been on oxygen until recently. She had a 50/50 chance of survival and pulled through. Will have weight issues and maybe asthma and immune issues as side affect. But so lucky to have her here with me and so proud of her.

Advice From Parents: Just believe that what the team of nurses and doctors are doing is for the best. And that they are there to support you and answer you questions. And document everything.

Premmies Name: Cleo Freyja-Amelia
Gestation Born: 33+1 weeks
Weight When Born: 2490g (5 pound 8oz)
Length When Born: 43cms
Current Age: 1 week
Current Weight Now: 2.2kgs
Babies Outlook/Ongoing Issues: Cleo was born via c-section at Townsville Mater Women’s & Children’s Hospital & was whisked away to Townsville General to the NICU. My husband went with her naturally so we were separated with no skin on skin contact or a cuddle. As soon as they could get me up the next day I was with her in the NICU but still being an inpatient at another hospital I had to return to rest etc. it was very hard to be away from her. Since being discharged I spend most of my time at the special care which is where she is at the moment, while my husband is at home which is an hour away with our 3 other children 9,2,&1. It’s very hard to be away from family & home. Cleo has trouble with forgetting to breathe & her heart rate drops (bradys & apnea) Cleo receives caffeine as treatment for these. she is in an open air crib now but still hooked up to stat machines. Cleo is tube gravity fed EBM(expressed breast milk). So far she has two holes in her heart that should correct themselves early on if not we will cross that bridge when we get there along with any other problems that may arise. Hoping to get her transferred back the the mater hospital any day/week (everyday they say maybe tomorrow).

Advice From Parents: Always ask questions even if they are minor ones every bit if information helps. Try to be there when the doctor does rounds to get the info straight from the horses mouth.

Premmies Name: William Francis Leggatt
Gestation Born: 33 week + 5 days
Weight When Born: 2840 grams
Length When Born: 48cms
Current Age: 6 months
Current Weight Now: 9kgs
Babies Outlook/Ongoing Issues: William surprised us while on holidays interstate, delivered via emergency C-section due to being in the breech position. William was on CPAP for 6 hours, then went into a humidicrib for temperature control (no oxygen). At 1 week old William became jaundice, 24 hours later everything was back to normal. Baby Will spent 2.5 weeks in hospital, on tube feeds gradually starting all ‘suck’ feeds then was allowed to go home! William is a big boy now, developing as he should corrected, the only ongoing issue William faces is a ‘floppy larynx’ which has improved alot already and should clear up itself by the age of 2.

Advice From Parents: Enjoy every moment, take lots of photos and ask the nurses as many questions as you like. There is no such thing as a silly question!

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