Inspirational Premature Babies Born at 24 Weeks Gestation

Read the inspirational stories of courage and fight for survival from these amazing premature babies born at 24 weeks gestation throughout Australia including advice from their parents.

Premature Babies Name: Rachel
Gestation Born: 24wks + 2days
Weight When Born: 669 grams
Length When Born:
Current Age: 22mths actual
Current Weight Now: 9.5kg
Babies Outlook/Ongoing Issues: Rachel’s outlook is very good. We are working with Physio to overcome some low tone and poor core strength issues. We are also working with Occupational Therapy to manage/minimalise a Sensory Perception Disorder. Rachel has been diagnosed with Chronic Lung Disease of Prematurity which makes her more susceptible to respiratory illnesses so we have to be very careful with coughs and colds for a little while yet. But since having her PDA closed surgically last month, and coming off home oxygen earlier this year, Rachel’s long term prognosis is very good. It is reasonable to expect Rachel to begin and function at school just like any other child. The only difference with Rachel (as with most prems) is that she has a strong survival instinct and loves life, which translates into a stubborn child always striving and taking pleasure in her achievements.

Advice From Parents: Look after yourself too so you have the energy to look after your baby(s). Your baby(s) is looking to you for love and strength and those are the most powerful medicines that you can give them.

Premmie Babies Name: Jordan and Benjamin
Gestation Born: 24 weeks + 5 days
Weight When Born: 687 grams and 700 grams
Length When Born: 30.5 cm and 31 cm
Current Age: 23 months
Current Weight Now: 11. 5 kg and 10 kg
Babies Outlook/Ongoing Issues: Jordan has a severe hearing loss and mild celebral palsy. She suffered a grade 4 ivh and was not given a good outlook. She is amazing now crawling and no eating issues. She requires physio and Occupational therapists and attends Early intervention programs for deaf children. Ben is a live wire that no longer walks he runs. He is a good teacher for his twin sister.

Advice From Parents: Get to know the other parents in the NICU . I have made very many great friends who helped me through the ups and downs that come with having premature bubs. We are still providing support to each other 2 years down the track. Keep a journal of things that happen whilst they are in hospital. Its ok to cry and let your emotions show the hospital staff are very supportive.

Premmie Babies Name: Hannah Jane
Gestation Born: 24+5 weeks
Weight When Born: 645 grams
Length When Born:
Current Age: 22 months (gest)
Current Weight Now: 10.5 kg
Babies Outlook/Ongoing Issues: Chronic Lung Disease

Premmie Babies Name: Caitlyn Lucy
Gestation Born: 24+6 weeks
Weight When Born: 630 grams
Length When Born:
Current Age: 22 months (gest)
Current Weight Now: 10 kg
Babies Outlook/Ongoing Issues: CLD, Eye problems

Premmie Babies Name: Allana Rose
Gestation Born: 24 weeks
Weight When Born: 1lb 4oz
Length When Born: 26cms
Current Age: 10 years
Current Weight Now: 22 kilos
Babies Outlook/Ongoing Issues: Allana struggles with cronic lung disease. She has very bad Asthma as well. She finds it hard to put on weight and when she gets sick it falls off her easily and takes forever to put back on. They say as she gets older her illnesses will get better, so i cant wait for that and im sure she cant wait either. We spent 186 days in hospital and i owe my life to the doctors and nurses who kept her alive!!

Advice From Parents: Dont be affraid to ask for help, and parents know best when it comes to your little one getting sick. I found alot of doctors would fob me off when i noticed a change in my daughter. Prems are different when they get sick and most doctors who dont know much about prems find it hard to listen when i know there is something wrong…so listen to your instincts.

Premmie Babies Name: Thomas & Alexander
Gestation Born: 24 + 4 weeks
Weight When Born: 630grams & 546grams
Length When Born: N/A
Current Age: 2 & 1/2
Current Weight Now: 10kg & 10.3kg
Babies Outlook/Ongoing Issues: Thomas and Alexander were born early due to PPROM. Thomas was ventilated for 75 days and then on CPAP from the majority of his time in hospital. He was in hospital for 255 days. After many setbacks, being diagnosed with an ASD (hole in heart) Pulminory hypertenions, bilateral hernias & CLD he was discharged from hospital on home oxygen and NGT feeds.
Alexander spent 132 days in hospital and was only ventilated for 7 days. He was on CPAP for 9 weeks and had hernia repair surgery before discharge. He has an open PDA & CLD.

Ongoing issues we face with the boys are speech delay, fine motor skill delay, feeding issues & Thomas has global developmental delay. But they are both progressing in all areas and are very happy little boys.

Advice From Parents: Find a positive from each day no matter how small of big. This will help you get through the day. Be kind to yourself as well take time to rest.

Premmie Babies Name: Millie
Gestation Born: 24+6
Weight When Born: 727g
Length When Born: 33.5cm
Current Age: 19 months
Current Weight Now: 9.3kg
Babies Outlook/Ongoing Issues: Millie suffered a grade 4 ihv and we were told she would have cerebal palsy we have one more check up but our pead said that she is pretty sure she wont have any cerebal palsy. She also had laser eye surgery for a stage 3 ROP and plus disease which also the opthamologist wasn’t hopefull on the outcome but proved them wrong again and has her full vision. She has chronic lung disease and gets chest infections and ear infections easily like most other prems, but apart from that she is as healthy as can be.she is the most stubborn energetic and happy baby but so are all premmies.

Advice From Parents: take lots and lots of photos and keep all their little keepsakes and STAY POSITIVE!!!

Premmie Babies Name: Kelvin Meloury (jnr)
Gestation Born: 24 weeks
Weight When Born: 426 grams
Length When Born: 26cm
Current Age: 8
Current Weight Now:
Babies Outlook/Ongoing Issues: My son was born at the Mercy hospital for women in Melbourne at 24 weeks. He was very little even for 24 weeks and I am yet to find a smaller baby that has survived excluding the guiness book of records. Kelvin Jnr’s mum had diabetes and developed pre-eclampsia during the pregnancy. She was lucky to survive. Kelvin Jnr was born with chronic lung disease, and spent his first 5 months in hospital. Luckily he didnt have to come home with oxygen and his heart and everything work fine. He gets sick easily with his lungs and a cough can knock him around but apart from that he is all good including ears and eyes 🙂

Advice From Parents: Be strong and dont give up hope, we were told on at least 3 occasions that our son would be lucky to make it through the night. BUT he did 🙂 Do as much research as you can for yourself as there is very very little help out there. Research everything you are told. We were told our son had delayed development when he was around 1. Thats okay we thought he will catch up. It actually means the child is delayed and it could be something more serious but they cant diagnose it until they are older, no one told us that though and for the next two years thought everything was fine and then we were caught totally off gaurd. Our son has cerebral palsy, again little to NO info out there and everything has to be discovered or stumbled across by us as parents, even though its the number one physical birth defect in australia!!! The physio, doctors ect can all explain what it is, but have little to zero help in assissting our boy. He only got a walking frame because we saw another kid with one and asked the physio. Then he was like ‘yeah sure’ he should have had one ages ago 🙁 Its not just the physio, everyone we have seen have been wonderful people but havent really been able to help, its only for the internet we are getting somewhere. I cant stress it enough do your own research and please dont ever give up hope. Miracles can and do happen, I have proof 🙂

Premmie Babies Name: Heather
Gestation Born: 24 weeks + 4 days
Weight When Born: 644 grams
Length When Born: 31 cm
Current Age: 3 and a half
Current Weight Now: 13 kg
Babies Outlook/Ongoing Issues: Chronic lung, scaring on brain and underdeveloped frontal lobes in brain causing issues with behaviour are the major ones. Has been in hospital a few times over the last few years, has had two sesiures which they still don’t know why. But has not had one sice Jan 09.

Advice From Parents: heather spent 113 days in hospital and we went through a very hard time, she came home in oxygen on 27th July 06 and and it stayed with her until 23 december 06, I would say shes 3 and half, she is behind for her age still not using the toliet but shes here and can talk and walk and answer back and sings and dances so hang in there, and before you know it you will be running around after them.

Premmie Babies Name: Emma
Gestation Born: 24+1 weeks
Weight When Born: 635grams
Length When Born: 30cm
Current Age: 3 yrs and 6 days
Current Weight Now: 22lbs
Babies Outlook/Ongoing Issues: Born with textbook of critical lungs, 40cm small intestine laperotomy at 9wks old (33 weeks gestation really). Pseudomonas sepsis, Pseudomonas Neumacocal. Fungal infection. 128 days in N.I.C.U. Then home. Oxgen dependant untill sept just before her 2nd birthday. Apnea allarmed till dec after removal of oxygen. Now she has Bilateral hearing aids and glasses for long sightedness, moderate to severe hearing loss. Hip displacia (never operated on due to fragility of situation) improving. Developmental delay about 8 months behind now we have the glasses and hearing aids. Speach impared. Need I go on…….

Advice From Parents: I wholeheartedly accept that I only get “Sent”, what I can deal with. This is MY way of coping. Emma is a beautiful cute little girl who’s cry when she came home sounded alike a death rattle. She has defied all the odds. And though it has been a long road, well worth the journey. We have been on an incredible journey, however I have learned more in the past three years than I ever did. Mostly about myself loved ones and life. My advice to any premmie parent is HOPE! xxx

Premature Babies Name: Ruby and Violet
Gestation Born: 24+4 weeks
Weight When Born: 700 grams
Length When Born:
Current Age: 20months
Current Weight Now: 6.89kgs
Babies Outlook/Ongoing Issues: Ruby and Violet were both Ventolated for 7days then again 3 days. Violet got NEC after 25 days and was operated on to remove some of the dead bowel. She was waiting for another operation and did not make it. They told us sometimes when one twin dies the other will follow, but in this case, Ruby was full steam ahead, it was like Violet has jumped inside her. Ruby is saying a few words, crawls, walks around the furniture and has taken steps. She is always standing alone. She finds it very hard to put on weight. we are looking into it now. All test have come back clear, still have 3 more tests. She also has a opened duct in her heart. Hopefully it will close on it’s own. She is a very happy little girl, very cheeky and doesn’t stop. She also has a little sister who was born term weighing 9pounds. Elsie is already bigger than Ruby. Ruby loves her big little sister.

Advice From Parents: Hang in there, the day will come when you take you baby home. You will look back on it as a distant memory. You will be in shock and feel very lost, but it will get better. Please ask all the questions you want. Get ready for your cheeky little monster to come home.

Premature Babies Name: Nico
Gestation Born: 24 weeks
Weight When Born: 710 grams
Length When Born: 31cm
Current Age: 12 months old
Current Weight Now: 6.3kg
Babies Outlook/Ongoing Issues: Our little miracle spent 7.5 months in hospital. We got off fairly lightly in terms of problems. He had a bilateral inguinal hernia repair and PDA ligation and a heap of infections and transfusions. No NEC or RoP, no long-lasting scares etc. Nico just did everything slowly. He was ventilated for 10 weeks, CPAP for 10 weeks, high flow for a few weeks and came home on low flow. He was off in the day at 10 months and overnight a few weeks later. He had a feeding tube put back in after 3 months of being home due to failure to thrive and to try to tackle chronic irritablity. The irritability is ongoing and has had us take him back to hospital 4 times but still a mystery. He has CP but we have no idea of severity as yet (tentative diagnosis due to age but pretty sure) and are waiting for early intervention.

Advice From Parents: Don’t feel guilty for continuing to live outside of NICU.

Premmies Name: Jade
Gestation Born: 24 weeks
Weight When Born: 600 grams
Length When Born: 31cm
Current Age: 20
Current Weight Now: 41 kg
Babies Outlook/Ongoing Issues: Jade had bleeding on the brain and doctors expected eye sight, lung issues, cerebral palsy and breast deformity due to phenomia.
Amazingly, aside from some scars on her chest and left leg, Jade is perfectly healthy!

Advice From Parents: Never give up! talk to and touch your baby whenever you get the chance- any form of contact you can give to your premmie baby is precious and extremely welcomed.

Premmies Name: Evie
Gestation Born: 24+6 weeks
Weight When Born: 652 grams
Length When Born: 32.5cm
Current Age: 10 months actual
Current Weight Now: 6.13kgs
Babies Outlook/Ongoing Issues: We had a massive surprise when our 2nd child arrived way ahead of schedule. Against the odds Evie came home fully breastfeeding and oxygen free. She had the usual issues associated with prematurity……CLD, PDA (surgically repaired day29 at 990g), IVH, Blood transfusions and infections. We still have a long way to go and won’t know if there are any long-term effects for sometime but she is making her milestones on time and thriving in every way that’s possible.

Advice From Parents: If anything keep a journal of your little one’s fight for life and remember your not alone. It seems like all doom and gloom in the beginning but the determination and strength of a prem baby is truly magic.

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